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It's Therapeutic Thursday with John Quick and Guest Farzin Mojtabai
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's guest is Farzin Mojtabai. Available NOW on AHTV, Aortic Hope's YouTube channel HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). Lifesaving OHS replaced my aortic valve and my aorta w
molly
10 hours ago
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Itโs Topic Tuesday!
Good morning, Aortic Hope community, my name is Jared and today we will be talking about the Fall Vaccine Game Plan! As fall begins, many of us start thinking about cooler weather, changing leaves, family gatherings, and the start of cold and flu season. For people living with aortic disease, survivors of aortic surgery or dissection, caregivers, and family members, fall is also a great time to talk with your healthcare team about a seasonal vaccine game plan. Vaccines may no
Jared Lin
3 days ago
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It's A Movement For Movement Monday!
โค๏ธ DONโT LET FEAR STOP YOUR RECOVERY After heart or aortic surgery, itโs easy to develop what we sometimes call โcardiac paralysisโ โ being so afraid of hurting yourself that you become afraid to move. But once your medical team gives you the green lightโฆ MOVE! ๐ถโโ๏ธ๐ช Start small. Walk the hallway. Get out of the chair. Take another lap tomorrow. Consider cardiac rehab. Gradually rebuild confidence in your body. You donโt have to run a marathon. Heck, some days making it to
molly
4 days ago
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THANK YOU for an AMAZING Aortic Disease Awareness Month
โค๏ธ๐ซ๐ช๐๐๐ง. ๐. ๐ ๐ข๐ก๐ง๐. ๐ซโค๏ธ As #AorticDiseaseAwarenessMonth comes to a close, all of us at Aortic Hope want to say one very important thing: ๐ง๐๐๐ก๐ ๐ฌ๐ข๐จ. Thank you for reading. Thank you for watching. Thank you for sharing. Thank you for participating. And most importantly, thank you for helping us take aortic disease awareness far beyond our own community. And WOWโฆ you certainly did! ๐ ๐ During September, on Facebook alone: โค๏ธ ๐ข๐๐ฟ ๐๐ถ๐ฒ๐๐ ๐ถ๐ป๐ฐ๐ฟ๐ฒ๐ฎ๐๏ฟฝ
carinandersen
Sep 30
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Consider Donating!
๐ Did you like what you saw from Aortic Hope this September? Throughout #AorticDiseaseAwarenessMonth, weโve worked hard to educate, connect, support, and bring HOPE to the aortic disease community. If our posts taught you something, helped you feel less alone, or gave you information worth sharing, please consider making a donation to help us continue this work 365 days a year. https://bit.ly/AorticHopeDonation โค๏ธ 100% of your donations go directly toward our initiatives, in
carinandersen
Sep 29
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It's Aortic Disease Awareness Month and Today is about Emotional Health
When the Emergency Is Over, But Your Mind Is Still on Alert Understanding Anxiety, Medical Trauma & PTSD After Aortic Disease When you hear the words aortic aneurysm, aortic dissection, or aortic surgery, life can suddenly feel divided into two parts: before and after. Even when the immediate danger has passed, your mind may not get the message. You may be home from the hospital. Your incision may be healing. Your doctors may tell you that everything looks stable. And yet you
carinandersen
Sep 25
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It's Aortic Disease Awareness Month - Reading Resources
๐โค๏ธ LOVE A GOOD BOOK? Weโve got something for you! For #AorticDiseaseAwarenessMonth, take a look at Aortic Hopeโs Reading Resourcesโa collection created with our community in mind. https://www.aortichope.org/post/reading-resources-by-the-community-for-the-community And this isnโt just a list of medical books! ๐ Poetry that puts the emotions of this journey into words. โค๏ธ Memoirs & personal stories from people who have lived it. ๐ซ Patient guides that help make aortic diseas
carinandersen
Sep 23
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My Journey Back to Open Heart Surgery ~ Carin Andersen
TODAY...IS BIG! Just in time for #AorticDiseaseAwarenessMonth and as we begin the journey into the emotional side of Aortic Disease, we want to premier a "documentary" created by Carin Andersen, Founder and Board Chair of Aortic Hope and President of Think Aorta US. Thank you for your honesty and vulnerability. My Journey Back to Open Heart Surgery ~ Carin Andersen https://youtu.be/Ybe7pNy0vPM โค๏ธ I knew what open-heart surgery looked like. But knowing what to expect didn't pr
carinandersen
Sep 22
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Pumphead: Why Does My Brain Feel Different After Heart Surgery
It's #AorticDiseaeAwarenessMonth and today we are talking about "๐ฃ๐๐บ๐ฝ๐ต๐ฒ๐ฎ๐ฑ": ๐ช๐ต๐ ๐๐ผ๐ฒ๐ ๐ ๐ ๐๐ฟ๐ฎ๐ถ๐ป ๐๐ฒ๐ฒ๐น ๐๐ถ๐ณ๐ณ๐ฒ๐ฟ๐ฒ๐ป๐ ๐๐ณ๐๐ฒ๐ฟ ๐๐ฒ๐ฎ๐ฟ๐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐?~ Emmanuel Mbaka You survived the operation. Your incision is healing. You are walking a little farther. Maybe you are finally sleeping in your own bed again. But something still doesn't feel quite right. You walk into a room and forget why you went there. You start a sentence and struggle to find
carinandersen
Sep 21
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It's Aortic Dissection Awareness Day - Hope Mail
๐It's #AorticDiseaseAwarenessMonth and today is about WHY AORTIC HOPE and HOPE MAIL? Because sometimes, you just need to know someone understands. An aortic diagnosis can leave patients and families feeling overwhelmed, frightened, and alone. Aortic Hope was created by survivors and caregivers who understand that journeyโand believe no one should have to walk it alone. ๐ฌ Introducing ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ is our way of putting that support directly into the han
carinandersen
Sep 20
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Today is Aortic Dissection Awareness Day!
โค๏ธ๐ซ TODAY IS #AORTICDISSECTIONAWARENESSDAY! ๐ซโค๏ธ And during #AorticDiseaseAwarenessMonth, we can think of no better day to share something incredibly specialโฆ ๐ ๐จ๐๐๐๐๐ ๐ฏ๐๐๐โ๐ 8๐๐ ๐จ๐๐๐๐๐ โ๐ป๐ฏ๐ฐ๐บ ๐ฐ๐บ ๐พ๐ฏ๐จ๐ป ๐ฏ๐ถ๐ท๐ฌ ๐ณ๐ถ๐ถ๐ฒ๐บ ๐ณ๐ฐ๐ฒ๐ฌโ ๐๐๐
๐๐โ๐๐๐๐๐๐๐๐๐ ๐๐ถ๐ผ! ๐ And yesโฆa few adorable pets made it in too! ๐พโค๏ธ Aortic dissection is serious. We know that not every story has the ending we desperately wish it did, and today we remember those
carinandersen
Sep 19
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It's Aortic Dissection Awareness Week - Support Groups
YOU DONโT HAVE TO EXPLAIN HERE. Living with aortic disease can sometimes feel like speaking a language that very few people understand: -The fear. -The waiting. -The scans. -The surgeries. -The medications. -The โis this normal?โ moments. -The recovery that doesnโt always look like recovery. And the life after the crisis that no one really prepared you for. ๐ง๐ต๐ฎ๐โ๐ ๐๐ต๐ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ ๐ฆ๐๐ฝ๐ฝ๐ผ๐ฟ๐ ๐๐ฟ๐ผ๐๐ฝ๐ ๐ฎ๐ฟ๐ฒ ๐ฝ๐ฎ๐๐ถ๐ฒ๐ป๐-๐น๐ฒ๐ฑ. Because no one unders
carinandersen
Sep 18
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How is the Brain Protected During Aortic Surgery?
It's #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessWeek. Today Emmanuel Mbaka, The African Perfusionist teaches us ๐๐ผ๐ ๐๐ผ ๐ช๐ฒ ๐ฃ๐ฟ๐ผ๐๐ฒ๐ฐ๐ ๐๐ต๐ฒ ๐๐ฟ๐ฎ๐ถ๐ป ๐๐๐ฟ๐ถ๐ป๐ด ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐? There is one organ we think about constantly during complex aortic surgery. The brain. Your brain depends on a continuous supply of oxygenated blood. But there is something important about the anatomy: the arteries carrying blood toward the brain arise from th
carinandersen
Sep 18
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Why Are Our Bodies Cooled During Aortic Surgery?
It's #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessWeek. Today, Emmanuel Mbaka, The African Perfusionist will explain: ๐ช๐ต๐ ๐ช๐ถ๐น๐น ๐ช๐ฒ ๐๐ผ๐ผ๐น ๐ฌ๐ผ๐๐ฟ ๐๐ผ๐ฑ๐ ๐๐๐ฟ๐ถ๐ป๐ด ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐? Imagine being told before your operation: โDuring your surgery, we will cool your body.โ That statement alone can sound frightening. You might immediately ask: โHow cold are you going to make me?โ In complex aortic surgery, particularly when we are operating
carinandersen
Sep 18
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Aortic Science Made Simple - Exercise May Not Be a No-Go for Aortic Dissection Survivors.
๐งฌ๐ซ NEW BLOG ALERT: AORTIC SCIENCE MADE EASY! Research can be fascinatingโฆbut letโs face it, sometimes reading a published medical study can feel like you need a medical degree just to get through the first paragraph! ๐คฏ Thatโs exactly why we created Aortic Science Made Easyโand our newest medical blogger, Aditi Darodkar, is kicking things off with a topic MANY survivors ask about: ๐ช EXERCISE AFTER AORTIC DISSECTION. Her first article, โExercise May Not Be a No-Go for Aorti
carinandersen
Sep 17
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Going Home: The Next Chapter of Recovery
๐กโค๏ธ THE WORDS YOUโVE BEEN WAITING TO HEAR: โYOUโRE GOING HOME!โ After aortic surgery, there are milestones that feel HUGEโthe first time sitting up, the first walk down the hallway, getting tubes and lines removedโฆand then comes one of the best: GOING HOME! ๐ Walking out of the hospital is absolutely something to celebrate. Youโve been through major surgery, long days, interrupted nights, countless vital checks and probably more hospital food than you ever wanted. ๐ But di
carinandersen
Sep 17
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What Should I Expect During My First Week in the Hospital?
โค๏ธ WHAT HAPPENS AFTER AORTIC SURGERY? Youโve made it through surgeryโbut what happens next? In his latest The African Perfusionist post, Emmanuel Mbaka walks patients and families through one of the biggest questions surrounding recovery: โWhat Should I Expect During My First Week in the Hospital? The First Days After Aortic Surgeryโ From waking up in the ICU and understanding all those tubes and monitors, to getting out of bed, walking the halls, managing pain, breathing exe
carinandersen
Sep 16
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It's Aortic Valve Disease Awareness Week - Treatment
AORTIC VALVE DISEASE: WHAT IS IT AND HOW IS IT TREATED? Your aortic valve may be small, but it has a HUGE responsibility! Located between the heartโs left ventricle and the aorta, the aortic valve opens with each heartbeat to allow blood to leave the heart and enter the aortaโand then closes to prevent blood from flowing backward. A typical native aortic valve has three leaflets, called a tricuspid aortic valve. Some people, however, are born with a congenital difference such
carinandersen
Sep 15
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Why Aortic Hope? AHTV YouTube Channel
๐ฅ๐ซ๐ช๐๐ฌ ๐ฆ๐๐ข๐จ๐๐ ๐ฌ๐ข๐จ ๐๐ ๐ช๐๐ง๐๐๐๐ก๐ ๐๐๐ง๐ฉ? Because sometimes the BEST way to understand aortic disease is to hear directly from the experts who treat it every day! In recognition of #AorticValveDiseaseAwarenessDay, check out ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒโ๐ ๐๐๐ง๐ฉ ๐ถ๐ป๐๐ฒ๐ฟ๐๐ถ๐ฒ๐ ๐๐ถ๐๐ต ๐๐ฟ. ๐ ๐ฒ๐ต๐ฟ๐ฑ๐ฎ๐ฑ ๐๐ต๐ผ๐ฟ๐ฒ๐ถ๐๐ต๐ถ ๐ฎ๐ป๐ฑ ๐๐ฎ๐ฟ๐ถ๐ป ๐๐ป๐ฑ๐ฒ๐ฟ๐๐ฒ๐ป,, dedicated to AORTIC VALVE DISEASE! โค๏ธ https://youtu.be/dlrgs4ib7yA?si=HYIijg1X7b1GrjFH Whether y
carinandersen
Sep 14
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It's Aortic Valve Disease Awareness Week
A typical native aortic valve has three leaflets, called a tricuspid aortic valve. But some people are born with a congenital heart difference affecting the aortic valve. ๐ซโค๏ธ LETโS TALK ABOUT THE AORTIC VALVE! For #AorticValveDiseaseAwarenessDay, during #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessMonth, letโs shine a light on the valve that serves as the gateway between your heart and your aorta! A typical native aortic valve has three leaflets, called a tricu
carinandersen
Sep 14
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