top of page
Search


Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
1 day ago
ย
ย
ย


Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
Jun 27
ย
ย
ย


Aortic Hope: 3rd Patient Guide!
Participate in something meaningful. For nearly ๐ญ๐ฌ ๐๐ฒ๐ฎ๐ฟ๐, Aortic Hope has shared powerful stories through our Survivor Seriesโstories that have educated, comforted, and inspired people around the world. Now, weโre creating the next edition of our Patient Guide: ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ: ๐น๐๐๐ ๐บ๐๐๐๐๐๐, ๐น๐๐๐ ๐น๐๐๐๐๐๐๐, ๐น๐๐๐ ๐ณ๐๐๐ This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto
molly56764
Jun 26
ย
ย
ย


It's Therapeutic Thursday With John Quick and Guest Nicky Jansen
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's is Part 2 with guest Nicky Jansen. Available NOW on AHTV, Aortic Hope's YouTube channel, click HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). Lifesaving OHS replaced my aortic valve
molly56764
Jun 25
ย
ย
ย


It's Topic Tuesday!
Primary Care Physicians: The Front Line of Aortic Disease Care When it comes to aortic disease, many people think first of cardiologists, vascular surgeons, or cardiac surgeons. However, one of the most important members of the healthcare team is often the person you see for annual checkups, routine care, and everyday health concerns: your Primary Care Physician (PCP). Primary Care Physicians are often the first healthcare professionals in a position to recognize risk factors
molly56764
Jun 23
ย
ย
ย


Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
Jun 20
ย
ย
ย


#ASAP Awareness Saves Aortas Period
#ASAP โ Awareness Saves Aortas Period. Created by Aortic Hope, #ASAP was born from one simple but powerful belief: awareness can save lives. By educating patients, families, caregivers, and healthcare professionals about aortic disease, we can help encourage earlier recognition, faster action, and better outcomes. Join us in spreading awareness because every conversation matters. Like and Share our posts, a simple act that can help save many #ASAP #AwarenessSavesAortasPeriod
carinandersen
Jun 18
ย
ย
ย


Rare Revolution Magazine featuring Carin Andersen
We are incredibly honored and grateful to share that an article has been written for Rare Revolution Magazine, featuring our Founder and Chair of the Board, Carin Andersen, as she courageously highlights her personal journey with aortic disease and the mission behind both Think Aorta US and Aortic Hope. What began as a life-changing diagnosis became a purpose-driven commitment to ensure that no patient, survivor, caregiver, or family walks this path alone. Through advocacy,
carinandersen
Jun 17
ย
ย
ย


It's Topic Tuesday!
๐ซ Meet the Specialists Behind the Images: Diagnostic Radiologists ๐ซ When living with aortic disease, there is an important member of your healthcare team you may never meet face-to-face โ but whose expertise plays a critical role in your care: the Diagnostic Radiologist. ๐ Diagnostic radiologists are medical doctors (MD or DO) who complete years of specialized training to interpret medical imaging and help detect, diagnose, and monitor disease. For the aortic community, th
molly56764
Jun 17
ย
ย
ย


AHTV Presents Qi Gong Featuring Kevin Songer!- June 14th
It'a a new season of Qi Gong on AHTV on certain Sunday's at 12 PM EST Join us for our newest season of Qi Gong on Aortic Hopeโs YouTube channel, led by community member, Kevin Songer. This gentle, flowing practice is designed to support relaxation, breathing, and overall well-being meeting you right where you are. Click HERE to watch and participate โจ Created by the community, for the community โจ Calm, mindful movement โจ A space to restore and reconnect ๐ฉบ As always, please c
molly56764
Jun 14
ย
ย
ย


Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
Jun 13
ย
ย
ย


Aortic Hope: 3rd Patient Guide!
Participate in something meaningful. For nearly ๐ญ๐ฌ ๐๐ฒ๐ฎ๐ฟ๐, Aortic Hope has shared powerful stories through our Survivor Seriesโstories that have educated, comforted, and inspired people around the world. Now, weโre creating the next edition of our Patient Guide: ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ: ๐น๐๐๐ ๐บ๐๐๐๐๐๐, ๐น๐๐๐ ๐น๐๐๐๐๐๐๐, ๐น๐๐๐ ๐ณ๐๐๐ This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto
molly56764
Jun 12
ย
ย
ย


It's Therapeutic Thursday With John Quick and Guest Nicky Jansen
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's guest is Nicky Jansen. To watch on AHTV, Aortic Hope's YouTube channel, click HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). Lifesaving OHS replaced my aortic valve and my aorta was
molly56764
Jun 11
ย
ย
ย


It's Topic Tuesday!
The Vascular Surgeon's Role in Aortic Disease Hello everyone! I hope you are all doing well. My name is Alvaro, and today we're discussing the vital role vascular surgeons play in the management of aortic disease. When people hear the term aortic dissection, they often imagine emergency open-heart surgery. While this is true for many Type A dissections, the management of Type B dissections, toracoabdominal aneurysm and abdominal aortic aneurysm are very different and frequen
ย
ย
ย


Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
Jun 6
ย
ย
ย


AHTV- Aortic Athletes Featuring Dr. Tamanna Singh- Always an Athlete: Aortic Disease and Return to Sports
Tune in now for an exciting conversation hosted by Jack Crowe and Greer Schneider of Aortic Athletes featuring Dr. Tamanna Singh from Cleveland Clinic on Aortic Hope's AHTV YouTube channel! ๐ The topic - Always an Athlete: Aortic Disease and Return to Sports Click HERE to watch Together, theyโll discuss: โ๏ธ Living with aortic disease as an athlete ๐ช Returning to sports and physical activity ๐ง Mindset, movement, and motivation ๐ Education and empowerment for the aortic com
molly56764
Jun 1
ย
ย
ย


Summary of ACE Your Healthcare Journey
Today we want to summarize how to ACE Your Healthcare Journey: Itโs About Balance, Not Battle โจ๐ซ Your healthcare journey shouldnโt feel like a power struggle โ it should feel like a partnership. ๐ ACE = Advocate. Communicate. Educate. These three steps help you take an active, confident role in your care while working with your healthcare team โ not against them. ๐
ฐ๏ธ Advocate for your needs ๐
ฒ Communicate openly and honestly ๐
ด Educate yourself and share your full story ๐ก
carinandersen
May 31
ย
ย
ย


Aortic Hope: 3rd Patient Guide!
Participate in something meaningful. For nearly ๐ญ๐ฌ ๐๐ฒ๐ฎ๐ฟ๐, Aortic Hope has shared powerful stories through our Survivor Seriesโstories that have educated, comforted, and inspired people around the world. Now, weโre creating the next edition of our Patient Guide: ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ: ๐น๐๐๐ ๐บ๐๐๐๐๐๐, ๐น๐๐๐ ๐น๐๐๐๐๐๐๐, ๐น๐๐๐ ๐ณ๐๐๐ This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto
molly56764
May 28
ย
ย
ย


AHTV Presents Qi Gong Featuring Kevin Songer!- May 24th
It'a a new season of Qi Gong on AHTV on certain Sunday's at 12 PM EST Join us for our newest season of Qi Gong on Aortic Hopeโs YouTube channel, led by community member, Kevin Songer. This gentle, flowing practice is designed to support relaxation, breathing, and overall well-being meeting you right where you are. Click HERE to watch and participate โจ Created by the community, for the community โจ Calm, mindful movement โจ A space to restore and reconnect ๐ฉบ As always, please c
molly56764
May 24
ย
ย
ย


ACE Your Healthcare Journey - EDUCATE
This month we are teaching you how to ACE Your Healthcare Journey and today's focus is E for EDUCATE โจ๐ซ Education is empowerment โ and itโs a vital part of taking control of your aortic journey. ๐ Educate = understanding your condition, your care, and your whole story. Hereโs how to stay informed and empowered: ๐ Learn about your diagnosis, treatments, and medications ๐งฌ Know your family history (#ThinkAortaThinkFamily) ๐ฌ Share both your physical and emotional experiences
carinandersen
May 24
ย
ย
ย
bottom of page
