🫀💙 Explore the Global Heart Hub Research Portal 💙🫀 Aortic Hope is proud to share this valuable resource from our friends at Global Heart Hub, created to help patients become informed and active partners in cardiovascular research. The portal provides easy-to-understand information about: 🔬 Different types of cardiovascular research 🧪 Clinical trials and how to participate 🗣️ Why the patient voice matters in research 🌎 Opportunities to find clinical trials relevant to

"Movement isn't about fixing yourself, it's about honoring yourself." It's easy to think movement is only about reaching a goal, losing weight, or getting back to where you once were. But for many in the aortic community, movement becomes something much deeper. It's a way of saying, "Thank you" to the body that fought so hard to keep you here. Every walk, every stretch, every mindful breath is an act of gratitude. It's choosing to care for the heart that continues to beat, th

🎉 We are thrilled to welcome 𝗘𝗺𝗺𝗮𝗻𝘂𝗲𝗹, 𝗧𝗵𝗲 𝗔𝗳𝗿𝗶𝗰𝗮𝗻 𝗣𝗲𝗿𝗳𝘂𝘀𝗶𝗼𝗻𝗶𝘀𝘁, as one of Aortic Hope’s newest 𝗠𝗲𝗱𝗶𝗰𝗮𝗹 𝗦𝗼𝗰𝗶𝗮𝗹 𝗠𝗲𝗱𝗶𝗮 𝗖𝗼𝗻𝘁𝗿𝗶𝗯𝘂𝘁𝗼𝗿𝘀! ❤️🫀 Emmanuel has been taking the internet by storm with his compassionate, educational, and insightful posts about 𝗼𝗽𝗲𝗻 𝗵𝗲𝗮𝗿𝘁 𝘀𝘂𝗿𝗴𝗲𝗿𝘆 𝗮𝗻𝗱 𝘁𝗵𝗲 𝗶𝗺𝗽𝗼𝗿𝘁𝗮𝗻𝘁 𝗿𝗼𝗹𝗲 𝗼𝗳 𝘁𝗵𝗲 𝗽𝗲𝗿𝗳𝘂𝘀𝗶𝗼𝗻𝗶𝘀𝘁. His ability to explain complex medical topics with empath

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

Participate in something meaningful. For nearly 𝟭𝟬 𝘆𝗲𝗮𝗿𝘀, Aortic Hope has shared powerful stories through our Survivor Series—stories that have educated, comforted, and inspired people around the world. Now, we’re creating the next edition of our Patient Guide: 𝗔𝗼𝗿𝘁𝗶𝗰 𝗛𝗼𝗽𝗲: 𝑹𝒆𝒂𝒍 𝑺𝒕𝒐𝒓𝒊𝒆𝒔, 𝑹𝒆𝒂𝒍 𝑹𝒆𝒄𝒐𝒗𝒆𝒓𝒚, 𝑹𝒆𝒂𝒍 𝑳𝒊𝒇𝒆 This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto

🎉We are beyond honored and incredibly thrilled to share some exciting news! ❤️Aortic Hope has been selected as a 𝗙𝗜𝗡𝗔𝗟𝗜𝗦𝗧 𝗳𝗼𝗿 𝗕𝗲𝘀𝘁 𝗧𝗲𝗮𝗺 𝗶𝗻 𝘁𝗵𝗲 𝗦𝗼𝗰𝗶𝗮𝗹 𝗛𝗲𝗮𝗹𝘁𝗵 𝗔𝘄𝗮𝗿𝗱𝘀, 𝗮𝗻𝗱 𝗼𝘂𝗿 𝗙𝗼𝘂𝗻𝗱𝗲𝗿 & 𝗕𝗼𝗮𝗿𝗱 𝗖𝗵𝗮𝗶𝗿, 𝗖𝗮𝗿𝗶𝗻 𝗔𝗻𝗱𝗲𝗿𝘀𝗲𝗻, 𝗵𝗮𝘀 𝗮𝗹𝘀𝗼 𝗯𝗲𝗲𝗻 𝗻𝗮𝗺𝗲𝗱 𝗮 𝗙𝗜𝗡𝗔𝗟𝗜𝗦𝗧 𝗳𝗼𝗿 𝗟𝗶𝗳𝗲𝘁𝗶𝗺𝗲 𝗔𝗰𝗵𝗶𝗲𝘃𝗲𝗺𝗲𝗻𝘁 𝗔𝘄𝗮𝗿𝗱! What an incredible honor to be recognized alongside so many inspiring advo

We are beyond honored and incredibly thrilled to share some exciting news! Aortic Hope has been selected as a 𝗙𝗜𝗡𝗔𝗟𝗜𝗦𝗧 𝗳𝗼𝗿 𝗕𝗲𝘀𝘁 𝗧𝗲𝗮𝗺 𝗶𝗻 𝘁𝗵𝗲 𝗦𝗼𝗰𝗶𝗮𝗹 𝗛𝗲𝗮𝗹𝘁𝗵 𝗔𝘄𝗮𝗿𝗱𝘀, 𝗮𝗻𝗱 𝗼𝘂𝗿 𝗙𝗼𝘂𝗻𝗱𝗲𝗿 & 𝗕𝗼𝗮𝗿𝗱 𝗖𝗵𝗮𝗶𝗿, 𝗖𝗮𝗿𝗶𝗻 𝗔𝗻𝗱𝗲𝗿𝘀𝗲𝗻, 𝗵𝗮𝘀 𝗮𝗹𝘀𝗼 𝗯𝗲𝗲𝗻 𝗻𝗮𝗺𝗲𝗱 𝗮 𝗙𝗜𝗡𝗔𝗟𝗜𝗦𝗧 𝗳𝗼𝗿 𝗟𝗶𝗳𝗲𝘁𝗶𝗺𝗲 𝗔𝗰𝗵𝗶𝗲𝘃𝗲𝗺𝗲𝗻𝘁 𝗔𝘄𝗮𝗿𝗱! What an incredible honor to be recognized alongside so many inspiring advocate

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

Hi everyone! My name is Jared Lin and today we will be diving into Loeys-Dietz Syndrome: What it is, Who it affects, and Why early diagnosis matters. Why Early Diagnosis Matters Genetics and Aortic Disease: Understanding Loeys-Dietz Syndrome When we talk about aortic disease, we often focus on imaging, surgery, blood pressure, or emergency symptoms. But for many patients and families, the story begins much deeper . . . In the genes! One important genetic condition linked to a

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

Participate in something meaningful. For nearly 𝟭𝟬 𝘆𝗲𝗮𝗿𝘀, Aortic Hope has shared powerful stories through our Survivor Series—stories that have educated, comforted, and inspired people around the world. Now, we’re creating the next edition of our Patient Guide: 𝗔𝗼𝗿𝘁𝗶𝗰 𝗛𝗼𝗽𝗲: 𝑹𝒆𝒂𝒍 𝑺𝒕𝒐𝒓𝒊𝒆𝒔, 𝑹𝒆𝒂𝒍 𝑹𝒆𝒄𝒐𝒗𝒆𝒓𝒚, 𝑹𝒆𝒂𝒍 𝑳𝒊𝒇𝒆 This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

Participate in something meaningful. For nearly 𝟭𝟬 𝘆𝗲𝗮𝗿𝘀, Aortic Hope has shared powerful stories through our Survivor Series—stories that have educated, comforted, and inspired people around the world. Now, we’re creating the next edition of our Patient Guide: 𝗔𝗼𝗿𝘁𝗶𝗰 𝗛𝗼𝗽𝗲: 𝑹𝒆𝒂𝒍 𝑺𝒕𝒐𝒓𝒊𝒆𝒔, 𝑹𝒆𝒂𝒍 𝑹𝒆𝒄𝒐𝒗𝒆𝒓𝒚, 𝑹𝒆𝒂𝒍 𝑳𝒊𝒇𝒆 This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto

💙Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's is Part 2 with guest Nicky Jansen. Available NOW on AHTV, Aortic Hope's YouTube channel, click HERE. ❤️If you’re ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. 💕Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). Lifesaving OHS replaced my aortic valve

Primary Care Physicians: The Front Line of Aortic Disease Care When it comes to aortic disease, many people think first of cardiologists, vascular surgeons, or cardiac surgeons. However, one of the most important members of the healthcare team is often the person you see for annual checkups, routine care, and everyday health concerns: your Primary Care Physician (PCP). Primary Care Physicians are often the first healthcare professionals in a position to recognize risk factors

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

#ASAP — Awareness Saves Aortas Period. Created by Aortic Hope, #ASAP was born from one simple but powerful belief: awareness can save lives. By educating patients, families, caregivers, and healthcare professionals about aortic disease, we can help encourage earlier recognition, faster action, and better outcomes. Join us in spreading awareness because every conversation matters. Like and Share our posts, a simple act that can help save many #ASAP #AwarenessSavesAortasPeriod

We are incredibly honored and grateful to share that an article has been written for Rare Revolution Magazine, featuring our Founder and Chair of the Board, Carin Andersen, as she courageously highlights her personal journey with aortic disease and the mission behind both Think Aorta US and Aortic Hope. What began as a life-changing diagnosis became a purpose-driven commitment to ensure that no patient, survivor, caregiver, or family walks this path alone. Through advocacy,

🫀 Meet the Specialists Behind the Images: Diagnostic Radiologists 🫀 When living with aortic disease, there is an important member of your healthcare team you may never meet face-to-face — but whose expertise plays a critical role in your care: the Diagnostic Radiologist. 💙 Diagnostic radiologists are medical doctors (MD or DO) who complete years of specialized training to interpret medical imaging and help detect, diagnose, and monitor disease. For the aortic community, th