Please join us in announcing and welcoming Jared Lin to the Aortic Hope team as our newest medical student volunteer and social media blog writer! We’re excited to have Jared join our community and contribute his passion for education, awareness, and storytelling to help support patients, survivors, caregivers, and families impacted by aortic disease. Through thoughtful and engaging content, Jared will help share educational insights and strengthen our mission of connection,

Hi everyone! My name is Jared Lin and today we will be diving into Loeys-Dietz Syndrome: What it is, Who it affects, and Why early diagnosis matters. Why Early Diagnosis Matters Genetics and Aortic Disease: Understanding Loeys-Dietz Syndrome When we talk about aortic disease, we often focus on imaging, surgery, blood pressure, or emergency symptoms. But for many patients and families, the story begins much deeper . . . In the genes! One important genetic condition linked to a

It’s A Movement for Movement Monday ☀️ ☀️ Summer reminder: If you’re moving outdoors, start early or later in the evening, bring water, and take breaks. Heat can affect blood pressure and some medications may increase sensitivity to dehydration. "This is what resilience looks like: choosing movement again." Resilience isn’t always loud or dramatic. Sometimes it looks like choosing to move again — taking the walk, doing the stretch, or simply showing up for yourself today. Eve

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you

Participate in something meaningful. For nearly 𝟭𝟬 𝘆𝗲𝗮𝗿𝘀, Aortic Hope has shared powerful stories through our Survivor Series—stories that have educated, comforted, and inspired people around the world. Now, we’re creating the next edition of our Patient Guide: 𝗔𝗼𝗿𝘁𝗶𝗰 𝗛𝗼𝗽𝗲: 𝑹𝒆𝒂𝒍 𝑺𝒕𝒐𝒓𝒊𝒆𝒔, 𝑹𝒆𝒂𝒍 𝑹𝒆𝒄𝒐𝒗𝒆𝒓𝒚, 𝑹𝒆𝒂𝒍 𝑳𝒊𝒇𝒆 This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto