Participate in something meaningful. For nearly 𝟭𝟬 𝘆𝗲𝗮𝗿𝘀, Aortic Hope has shared powerful stories through our Survivor Series—stories that have educated, comforted, and inspired people around the world. Now, we’re creating the next edition of our Patient Guide: 𝗔𝗼𝗿𝘁𝗶𝗰 𝗛𝗼𝗽𝗲: 𝑹𝒆𝒂𝒍 𝑺𝒕𝒐𝒓𝒊𝒆𝒔, 𝑹𝒆𝒂𝒍 𝑹𝒆𝒄𝒐𝒗𝒆𝒓𝒚, 𝑹𝒆𝒂𝒍 𝑳𝒊𝒇𝒆 This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto

Welcome back, everyone! Continuing our theme of exploring genetic syndromes that can cause heritable aortic disease, today we will be diving into Ehlers-Danlos syndrome (EDS). EDS is a group of inherited conditions that affect the body's connective tissue. While many people associate EDS with flexible joints or stretchy skin, some forms of the condition can also affect the heart and blood vessels, including the aorta. Understanding this connection is an important step in prev

Hello Aortic Hope Community! My name is Zach, and I am excited to say that this will be my first post as a writer on the Aortic Hope team! This month, we're starting a new series exploring how genetics can play a role in aortic disease. Today, we'll begin with Marfan syndrome, one of the most common inherited conditions that can affect the aorta. What Is Marfan Syndrome? Marfan syndrome is an inherited condition that affects the body's connective tissue. Connective tissue ac

IT'S TIME TO SHINE! 🌟 We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! 🤩 *Two Ways to Share Your Story:* 1️⃣ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. 🌟 2️⃣ *Where Are They Now?*: Past storytellers, it's time to update us on you