2022 Board of Directors:

Carin Andersen
Bill Barnhart
Terri Cook
Maryanne Leister
Betsey Luipold
Deb Joly-Warcholik
Tammy Warner

  • Carin Andersen - President/Co-Founder/Director of PR & AHTV Co-Host

  • Bill Barnhart - Director of Community Relations & Marfan Liaison

  • Terri Cook - Director of Fundraising

  • Maryanne Leister - Treasurer

  • Betsey Luipold - Vice President/Director of Social Media & Marketing

  • Deb Joly Warcholik - Director of Volunteer Services 

  • Tammy Warner - Secretary/Director of Community Relations

*Non-Board Members:

  • Charlotte Fee - Director of Support Services (Caregivers)

  • Katherine Langer - Director of Support Services (Bereavement)

  • Melissa Lee - Director of Support Services

  • Tim O'Reilly - Director of Support Services 

  • Ryan Rodarmer - Director of Genetic Education

  • Jeni Schaffer - Director of Administrative Services

Connecting Hearts...One Beat at a Time

 

It was the spring of 2016 when two aortic disease survivors discussed the possibilities of hosting a celebratory event in honor of the upcoming Global Aortic Dissection Awareness Day. Together, they talked about their hopes and dreams, cried over their shared struggles, and laughed in anticipation over the prospects of  meeting in person.  Once the two met, they quickly realized the need for an organization to be created that would focus on all aspects of Aortic Disease.

 

Having just recently connected with a Caregiver to a husband and child with Marfan Syndrome), the three recognized that in order for this group to truly come to fruition, having a Caregiver would be an intricate piece of the puzzle.

In bringing different experiences and perspectives to the group,  Aortic Hope was formed.  The group is now a globally recognized non-profit organization whose focus is to Spread Hope, Create Awareness and Provide Support during the recovery and management of Aortic Disease. 

 

Aortic Hope added  additional key individuals that all have experienced Aortic Disease.

 

Together, they work tirelessly in not only managing their personal lives but organizing fundraisers, online support groups, providing daily inspiration and wisdom, hope mail care packages, and MUCH, MUCH more.  Our current Board of Directors includes Carin Andersen, Bill Barnhart, Terri Cook, Maryanne Leister, Betsey Luipold, Tammy Warner. and Deb Joly-Warcholik.

 

In 2020 Aortic Hope fully endorsed the organization Think Aorta US (TAUS).  TAUS focuses on educating the public and healthcare providers about the reality of aortic disease.  The secondary focus is to utilize aortic disease survivors to teach others to advocate for themselves by sharing their medical history. Aortic Disease; it's more common than you think.

 

This is only the beginning...

 

Aortic Hope strives to Connect Hearts....One Beat At A Time.  Your donations are graciously appreciated, which helps make our initiatives become your reality...

Our Mission

Aortic Hope (501c3 Charity) is a community of patients, survivors, and caregivers living with an aortic disease.

 

The community's goals are to Spread Hope, Create Awareness, and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.
 

Spread Hope

Spreading hope is the cornerstone of what Aortic Hope is about. We spread hope online by providing:

  • Inspirational stories posted by community members

  • Hope Mail Care Packages sent to community members

  • Saturday Survivor Video and Blog Series
     

Create Awareness

Aortic Hope wants to help educate the public. To achieve this goal we:

  • Actively participate as a working group member of Think Aorta US

  • Participate in radio shows (Sirius XM), podcasts, Television Programs (The Donna Drake Show), Rotary Clubs, local fundraising, speaking at symposiums and educational events such as the John Ritter Foundation for Aortic Health Community Symposium and Rock From The Heart

  • Offer items on our Hope Shops to spread awareness
     

Provide Support

Navigating the recovery and management of aortic disease is often confusing and overwhelming.  Aortic Hope provides support for aortic disease patients, survivors, and caregivers by:

  • Hosting Live Q&A sessions on our Facebook page with professionals associated with Aortic Health

  • Featuring Ask A Dr. and allowing community members to have questions answered in real time by a Cardiologist

  • Offering weekly online support group and include guest speakers

  • Presenting Tableside Information Cards

  • Collaborating with The Mended Hearts and promoting their accreditation program so community members can become mentors