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It's Topic Tuesday!
The Vascular Surgeon's Role in Aortic Disease Hello everyone! I hope you are all doing well. My name is Alvaro, and today we're discussing the vital role vascular surgeons play in the management of aortic disease. When people hear the term aortic dissection, they often imagine emergency open-heart surgery. While this is true for many Type A dissections, the management of Type B dissections, toracoabdominal aneurysm and abdominal aortic aneurysm are very different and frequen
Alvaro Jose Martinez Santacruz
2 days ago
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Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
4 days ago
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AHTV- Aortic Athletes Featuring Dr. Tamanna Singh- Always an Athlete: Aortic Disease and Return to Sports
Tune in now for an exciting conversation hosted by Jack Crowe and Greer Schneider of Aortic Athletes featuring Dr. Tamanna Singh from Cleveland Clinic on Aortic Hope's AHTV YouTube channel! ๐ The topic - Always an Athlete: Aortic Disease and Return to Sports Click HERE to watch Together, theyโll discuss: โ๏ธ Living with aortic disease as an athlete ๐ช Returning to sports and physical activity ๐ง Mindset, movement, and motivation ๐ Education and empowerment for the aortic com
molly56764
Jun 1
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Summary of ACE Your Healthcare Journey
Today we want to summarize how to ACE Your Healthcare Journey: Itโs About Balance, Not Battle โจ๐ซ Your healthcare journey shouldnโt feel like a power struggle โ it should feel like a partnership. ๐ ACE = Advocate. Communicate. Educate. These three steps help you take an active, confident role in your care while working with your healthcare team โ not against them. ๐
ฐ๏ธ Advocate for your needs ๐
ฒ Communicate openly and honestly ๐
ด Educate yourself and share your full story ๐ก
carinandersen
May 31
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Aortic Hope: 3rd Patient Guide!
Participate in something meaningful. For nearly ๐ญ๐ฌ ๐๐ฒ๐ฎ๐ฟ๐, Aortic Hope has shared powerful stories through our Survivor Seriesโstories that have educated, comforted, and inspired people around the world. Now, weโre creating the next edition of our Patient Guide: ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ: ๐น๐๐๐ ๐บ๐๐๐๐๐๐, ๐น๐๐๐ ๐น๐๐๐๐๐๐๐, ๐น๐๐๐ ๐ณ๐๐๐ This book will focus on hope beyond the aortic event, and we would love to include as many survivor and caregiver sto
molly56764
May 28
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AHTV Presents Qi Gong Featuring Kevin Songer!- May 24th
It'a a new season of Qi Gong on AHTV on certain Sunday's at 12 PM EST Join us for our newest season of Qi Gong on Aortic Hopeโs YouTube channel, led by community member, Kevin Songer. This gentle, flowing practice is designed to support relaxation, breathing, and overall well-being meeting you right where you are. Click HERE to watch and participate โจ Created by the community, for the community โจ Calm, mindful movement โจ A space to restore and reconnect ๐ฉบ As always, please c
molly56764
May 24
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ACE Your Healthcare Journey - EDUCATE
This month we are teaching you how to ACE Your Healthcare Journey and today's focus is E for EDUCATE โจ๐ซ Education is empowerment โ and itโs a vital part of taking control of your aortic journey. ๐ Educate = understanding your condition, your care, and your whole story. Hereโs how to stay informed and empowered: ๐ Learn about your diagnosis, treatments, and medications ๐งฌ Know your family history (#ThinkAortaThinkFamily) ๐ฌ Share both your physical and emotional experiences
carinandersen
May 24
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It's Therapeutic Thursday With John Quick and Guest Molly Thomas
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's guest is Molly Thomas, an Aortic Hope Board Member and Social Media Director. To watch on AHTV, Aortic Hope's YouTube channel, click HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). L
molly56764
May 21
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ACE Your Healthcare Journey - COMMUNICATE
This month we are focusing on how to ACE Your Healthcare Journey and today;s focus is C for COMMUNICATE โจ๐ซ Communication is the bridge between confusion and clarity โ and itโs a key part of taking control of your healthcare journey. ๐ Communicate = staying connected, asking questions, and speaking up. Hereโs how to strengthen your communication: ๐ฌ Share your symptoms clearly โ even the small changes ๐ฑ Use patient portals, calls, or emails to stay in touch โ Ask questions
carinandersen
May 17
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Mental Health Awareness Month - Patient Guides
๐ง ๐ซ Mental Health Awareness Month: Knowledge Can Ease the Weight ๐ซ๐ง When youโre living with aortic disease, the mental and emotional toll can feel just as heavy as the physical side. The unknowns, the questions, the โwhat ifsโ โ itโs a lot. ๐ One simple way to ease that stress? ๐ Download one of Aortic Hopeโs Patient Guides. Our guides โ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐ฒ๐ฎ๐๐ฒ: ๐ง๐ต๐ฒ ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐๐๐ถ๐ฑ๐ฒ and ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐๐ฒ๐ฐ๐๐ถ๐ผ๐ป: ๐ง๐ต๐ฒ ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐๐๐ถ๐ฑ๐ฒโ
carinandersen
May 15
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Think Aorta Think Family
Think Aorta Think Family Aortic Dissections are rare but Aortic Disease is more common than you think. Talk to your family about the family medical history. When in doubt, check it out. No matter how you say it or rephrase it, two simple words are saving so many lives. THINK AORTA! #AorticHope #AorticDiseaseAwareness #AortaEd #ASAP
carinandersen
May 14
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AHTV Presents Qi Gong Featuring Kevin Songer!- May 10th
It'a a new season of Qi Gong on AHTV on certain Sunday's at 12 PM EST Join us for our newest season of Qi Gong on Aortic Hopeโs YouTube channel, led by community member, Kevin Songer. This gentle, flowing practice is designed to support relaxation, breathing, and overall well-being meeting you right where you are. Click HERE to watch and participate โจ Created by the community, for the community โจ Calm, mindful movement โจ A space to restore and reconnect ๐ฉบ As always, please c
molly56764
May 10
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ACE Your Healthcare Journey - ADVOCATE
This month we are focusing our attention on helping you ACE Your Healthcare Journey and today is about ADVOCATING. ๐ซโจ ACE Your Healthcare Journey: A is for ADVOCATE โจ๐ซ Advocating for yourself isnโt always easy โ but itโs one of the most powerful things you can do on your aortic journey. ๐ Advocate = taking an active role in your care. Hereโs how you can start: ๐ Keep copies of your records, scans, and test results โ Write down questions before appointments ๐ฅ Bring a trus
carinandersen
May 10
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Aortic Hope's Survivor Series and Where Are They Now!
IT'S TIME TO SHINE! ๐ We're revving up the engines for the Saturday Survivor Series and "Where Are They Now?" - a dynamic duo of storytelling events that's all about YOU! ๐คฉ *Two Ways to Share Your Story:* 1๏ธโฃ *Saturday Survivor Series*: Share your journey with Aortic disease from a patient or caregiver perspective. Your story can be a recorded event on the AHTV YouTube channel or a written story. ๐ 2๏ธโฃ *Where Are They Now?*: Past storytellers, it's time to update us on you
molly56764
May 9
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Patient Awareness Posters during National Mental Health Month
๐ซ๐ Looking for a meaningful way to ease the emotional toll of aortic disease? ๐๐ซ One powerful step is helping others feel less alone โ and you can do that with our FREE Patient Awareness Posters. https://forms.office.com/r/WqrXNG3cAw ๐ฆ Each pack includes 10 posters ๐ Displayed in exam rooms across the country ๐ฑ Provides easy access to support groups & patient guides These posters donโt just share information โ they create connection, spark conversations, and help patie
carinandersen
May 8
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National Nurse Appreciation Day
๐ฉบ๐ Happy National Nurse Appreciation Day! ๐๐ฉบ Today, Aortic Hope proudly celebrates the incredible nurses who stand beside our community every step of the way. From the very first moments of diagnosis to surgery, recovery, and lifelong management, nurses are often the steady, compassionate presence patients and caregivers rely on most. You are the ones who listen, comfort, educate, advocate, and act โ often all at once. ๐ซIn the aortic community, your role is especially vi
carinandersen
May 6
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It's Mental Health Awareness Month
๐ง ๐ซ May is National Mental Health Month ๐ซ๐ง At Aortic Hope, we recognize that aortic disease doesnโt just affect the body โ it can deeply impact your mental and emotional well-being too. ๐ Experiences like diagnosis, surgery, and recovery can bring on anxiety, fear, or even PTSD. And in our community, those feelings are more common than many realize โ and just as important to address as physical health. Thatโs why weโre sharing this important conversation from AHTV ๐ฅ feat
carinandersen
May 1
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It's Therapeutic Thursday! Featuring John Quick and guest Molly Thomas
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. First Therapeutic Thursday, May 21 at 12p ET with guest Molly Thomas. To watch, click HERE. Weโre inviting ๐ฌ๐ข๐จ to be a guest on our pre-recorded series and share how aortic disease โ whether an aneurysm, valve disease, or dissection โ has impacted you mentally and emotionally. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐๐ฝ๐ฎ๐ฐ๐ฒ ๐๐ผ ๐ฏ๐ฒ ๐ฟ๐ฒ๐ฎ๐น. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐ฐ๐ต๐ฎ๐ป๐ฐ๐ฒ ๐๐ผ
molly56764
Apr 30
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It's World Book Day!
๐๐ซ๐๐ฎ๐ฝ๐ฝ๐ ๐ช๐ผ๐ฟ๐น๐ฑ ๐๐ผ๐ผ๐ธ ๐๐ฎ๐ ๐ณ๐ฟ๐ผ๐บ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ!๐ซ๐ Today we celebrate the power of stories โ and in our community, those stories are more than wordsโฆ they are strength, survival, and hope. ๐ Many of our incredible community members have turned their journeys into meaningful works of inspiration โ sharing their experiences to educate, comfort, and uplift others. ๐ From personal storiesโฆ ๐ To contributions in ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐๐ฒ๐ฐ๐๐ถ๐ผ๐ป: ๐ง๐ต
carinandersen
Apr 23
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It's A Movement For Movement Monday!
โจ It's A Movement For Movement Monday โจ โYou are not behind. You are building.โ Pause right thereโbecause this one matters. In a world that glorifies speed, milestones, and โcatching upโโฆ itโs easy to feel like youโve missed something. Like you should be further along. Doing more. Moving faster. But hereโs the truth: Growth doesnโt rush. It layers. What feels like โslowโ is actually your brain and body learning, adapting, strengthening. Every walk, every stretch, every rest d
molly56764
Apr 20
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