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Spoon Theory
๐ฅโค๏ธ It's #AorticDiseaseAwarenessMonth and today we are talking about SPOONS - HOW MANY SPOONS DO YOU HAVE TODAY? Ever heard of Spoon Theory by Christine Miserandino? Itโs a simple way of describing the limited amount of physical and emotional energy we may have available each day. For someone living with aortic disease, recovering from surgery, managing medications, dealing with fatigue, attending appointmentsโor simply carrying the mental weight of โwhat if?โโeveryday tasks
carinandersen
7 hours ago
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It's Aortic Disease Awareness Month - Reading Resources
๐โค๏ธ LOVE A GOOD BOOK? Weโve got something for you! For #AorticDiseaseAwarenessMonth, take a look at Aortic Hopeโs Reading Resourcesโa collection created with our community in mind. https://www.aortichope.org/post/reading-resources-by-the-community-for-the-community And this isnโt just a list of medical books! ๐ Poetry that puts the emotions of this journey into words. โค๏ธ Memoirs & personal stories from people who have lived it. ๐ซ Patient guides that help make aortic diseas
carinandersen
3 days ago
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My Journey Back to Open Heart Surgery ~ Carin Andersen
TODAY...IS BIG! Just in time for #AorticDiseaseAwarenessMonth and as we begin the journey into the emotional side of Aortic Disease, we want to premier a "documentary" created by Carin Andersen, Founder and Board Chair of Aortic Hope and President of Think Aorta US. Thank you for your honesty and vulnerability. My Journey Back to Open Heart Surgery ~ Carin Andersen https://youtu.be/Ybe7pNy0vPM โค๏ธ I knew what open-heart surgery looked like. But knowing what to expect didn't pr
carinandersen
4 days ago
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The Person in the Waiting Room: The Emotional Toll of Open-Heart Surgery on Care Partners ~ Emmanuel Mbaka
It's #AorticDiseaseAwarenessMonth and time to focus on the CARE PARTNERS! ๐ง๐ต๐ฒ ๐ฃ๐ฒ๐ฟ๐๐ผ๐ป ๐ถ๐ป ๐๐ต๐ฒ ๐ช๐ฎ๐ถ๐๐ถ๐ป๐ด ๐ฅ๐ผ๐ผ๐บ: ๐ง๐ต๐ฒ ๐๐บ๐ผ๐๐ถ๐ผ๐ป๐ฎ๐น ๐ง๐ผ๐น๐น ๐ผ๐ณ ๐ข๐ฝ๐ฒ๐ป-๐๐ฒ๐ฎ๐ฟ๐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐ ๐ผ๐ป ๐๐ฎ๐ฟ๐ฒ ๐ฃ๐ฎ๐ฟ๐๐ป๐ฒ๐ฟ๐ ~ Emmanuel Mbaka "The African Perfusioist" We talk a lot about the person lying on the operating table. But what about the person sitting in the waiting room? The spouse. The parent. The child. The sibling. The friend. The person refreshing th
carinandersen
5 days ago
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It's Aortic Dissection Awareness Day - Hope Mail
๐It's #AorticDiseaseAwarenessMonth and today is about WHY AORTIC HOPE and HOPE MAIL? Because sometimes, you just need to know someone understands. An aortic diagnosis can leave patients and families feeling overwhelmed, frightened, and alone. Aortic Hope was created by survivors and caregivers who understand that journeyโand believe no one should have to walk it alone. ๐ฌ Introducing ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ is our way of putting that support directly into the han
carinandersen
6 days ago
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Today is Aortic Dissection Awareness Day!
โค๏ธ๐ซ TODAY IS #AORTICDISSECTIONAWARENESSDAY! ๐ซโค๏ธ And during #AorticDiseaseAwarenessMonth, we can think of no better day to share something incredibly specialโฆ ๐ ๐จ๐๐๐๐๐ ๐ฏ๐๐๐โ๐ 8๐๐ ๐จ๐๐๐๐๐ โ๐ป๐ฏ๐ฐ๐บ ๐ฐ๐บ ๐พ๐ฏ๐จ๐ป ๐ฏ๐ถ๐ท๐ฌ ๐ณ๐ถ๐ถ๐ฒ๐บ ๐ณ๐ฐ๐ฒ๐ฌโ ๐๐๐
๐๐โ๐๐๐๐๐๐๐๐๐ ๐๐ถ๐ผ! ๐ And yesโฆa few adorable pets made it in too! ๐พโค๏ธ Aortic dissection is serious. We know that not every story has the ending we desperately wish it did, and today we remember those
carinandersen
Sep 19
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It's Aortic Dissection Awareness Week - Support Groups
YOU DONโT HAVE TO EXPLAIN HERE. Living with aortic disease can sometimes feel like speaking a language that very few people understand: -The fear. -The waiting. -The scans. -The surgeries. -The medications. -The โis this normal?โ moments. -The recovery that doesnโt always look like recovery. And the life after the crisis that no one really prepared you for. ๐ง๐ต๐ฎ๐โ๐ ๐๐ต๐ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ ๐ฆ๐๐ฝ๐ฝ๐ผ๐ฟ๐ ๐๐ฟ๐ผ๐๐ฝ๐ ๐ฎ๐ฟ๐ฒ ๐ฝ๐ฎ๐๐ถ๐ฒ๐ป๐-๐น๐ฒ๐ฑ. Because no one unders
carinandersen
Sep 18
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How is the Brain Protected During Aortic Surgery?
It's #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessWeek. Today Emmanuel Mbaka, The African Perfusionist teaches us ๐๐ผ๐ ๐๐ผ ๐ช๐ฒ ๐ฃ๐ฟ๐ผ๐๐ฒ๐ฐ๐ ๐๐ต๐ฒ ๐๐ฟ๐ฎ๐ถ๐ป ๐๐๐ฟ๐ถ๐ป๐ด ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐? There is one organ we think about constantly during complex aortic surgery. The brain. Your brain depends on a continuous supply of oxygenated blood. But there is something important about the anatomy: the arteries carrying blood toward the brain arise from th
carinandersen
Sep 18
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Why Are Our Bodies Cooled During Aortic Surgery?
It's #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessWeek. Today, Emmanuel Mbaka, The African Perfusionist will explain: ๐ช๐ต๐ ๐ช๐ถ๐น๐น ๐ช๐ฒ ๐๐ผ๐ผ๐น ๐ฌ๐ผ๐๐ฟ ๐๐ผ๐ฑ๐ ๐๐๐ฟ๐ถ๐ป๐ด ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐ฆ๐๐ฟ๐ด๐ฒ๐ฟ๐? Imagine being told before your operation: โDuring your surgery, we will cool your body.โ That statement alone can sound frightening. You might immediately ask: โHow cold are you going to make me?โ In complex aortic surgery, particularly when we are operating
carinandersen
Sep 18
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Aortic Science Made Simple - Exercise May Not Be a No-Go for Aortic Dissection Survivors.
๐งฌ๐ซ NEW BLOG ALERT: AORTIC SCIENCE MADE EASY! Research can be fascinatingโฆbut letโs face it, sometimes reading a published medical study can feel like you need a medical degree just to get through the first paragraph! ๐คฏ Thatโs exactly why we created Aortic Science Made Easyโand our newest medical blogger, Aditi Darodkar, is kicking things off with a topic MANY survivors ask about: ๐ช EXERCISE AFTER AORTIC DISSECTION. Her first article, โExercise May Not Be a No-Go for Aorti
carinandersen
Sep 17
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Going Home: The Next Chapter of Recovery
๐กโค๏ธ THE WORDS YOUโVE BEEN WAITING TO HEAR: โYOUโRE GOING HOME!โ After aortic surgery, there are milestones that feel HUGEโthe first time sitting up, the first walk down the hallway, getting tubes and lines removedโฆand then comes one of the best: GOING HOME! ๐ Walking out of the hospital is absolutely something to celebrate. Youโve been through major surgery, long days, interrupted nights, countless vital checks and probably more hospital food than you ever wanted. ๐ But di
carinandersen
Sep 17
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What Should I Expect During My First Week in the Hospital?
โค๏ธ WHAT HAPPENS AFTER AORTIC SURGERY? Youโve made it through surgeryโbut what happens next? In his latest The African Perfusionist post, Emmanuel Mbaka walks patients and families through one of the biggest questions surrounding recovery: โWhat Should I Expect During My First Week in the Hospital? The First Days After Aortic Surgeryโ From waking up in the ICU and understanding all those tubes and monitors, to getting out of bed, walking the halls, managing pain, breathing exe
carinandersen
Sep 16
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It's Aortic Valve Disease Awareness Week - Treatment
AORTIC VALVE DISEASE: WHAT IS IT AND HOW IS IT TREATED? Your aortic valve may be small, but it has a HUGE responsibility! Located between the heartโs left ventricle and the aorta, the aortic valve opens with each heartbeat to allow blood to leave the heart and enter the aortaโand then closes to prevent blood from flowing backward. A typical native aortic valve has three leaflets, called a tricuspid aortic valve. Some people, however, are born with a congenital difference such
carinandersen
Sep 15
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Why Aortic Hope? AHTV YouTube Channel
๐ฅ๐ซ๐ช๐๐ฌ ๐ฆ๐๐ข๐จ๐๐ ๐ฌ๐ข๐จ ๐๐ ๐ช๐๐ง๐๐๐๐ก๐ ๐๐๐ง๐ฉ? Because sometimes the BEST way to understand aortic disease is to hear directly from the experts who treat it every day! In recognition of #AorticValveDiseaseAwarenessDay, check out ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒโ๐ ๐๐๐ง๐ฉ ๐ถ๐ป๐๐ฒ๐ฟ๐๐ถ๐ฒ๐ ๐๐ถ๐๐ต ๐๐ฟ. ๐ ๐ฒ๐ต๐ฟ๐ฑ๐ฎ๐ฑ ๐๐ต๐ผ๐ฟ๐ฒ๐ถ๐๐ต๐ถ ๐ฎ๐ป๐ฑ ๐๐ฎ๐ฟ๐ถ๐ป ๐๐ป๐ฑ๐ฒ๐ฟ๐๐ฒ๐ป,, dedicated to AORTIC VALVE DISEASE! โค๏ธ https://youtu.be/dlrgs4ib7yA?si=HYIijg1X7b1GrjFH Whether y
carinandersen
Sep 14
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It's Aortic Valve Disease Awareness Week
A typical native aortic valve has three leaflets, called a tricuspid aortic valve. But some people are born with a congenital heart difference affecting the aortic valve. ๐ซโค๏ธ LETโS TALK ABOUT THE AORTIC VALVE! For #AorticValveDiseaseAwarenessDay, during #AorticDiseaseAwarenessMonth and #AorticDissectionAwarenessMonth, letโs shine a light on the valve that serves as the gateway between your heart and your aorta! A typical native aortic valve has three leaflets, called a tricu
carinandersen
Sep 14
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Story of Survival from Bonit Sharma and Think Aorta US for the ADAW 2026 Collaboration
๐ซต ๐ฌ๐ข๐จ ๐ฐ๐ผ๐๐น๐ฑ ๐ฏ๐ฒ ๐๐ต๐ฒ ๐๐ต๐ถ๐ป๐ถ๐ป๐ด ๐๐๐ฎ๐ฟ ๐ถ๐ป ๐๐ผ๐บ๐ฒ๐ผ๐ป๐ฒ ๐ฒ๐น๐๐ฒโ๐ ๐น๐ถ๐ณ๐ฒ. โญโค๏ธ ๐๐ผ๐ฟ ๐บ๐ผ๐ฟ๐ฒ ๐๐ต๐ฎ๐ป ๐ญ๐ฌ ๐๐ฒ๐ฎ๐ฟ๐, ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ has been sharing the real stories of patients, survivors, and caregiversโbecause sometimes hearing โIโve been thereโ is exactly what someone needs. Whether itโs Aortic Valve Disease, an Aortic Aneurysm, or an Aortic Dissection, ๐๐ผ๐๐ฟ ๐๐๐ผ๐ฟ๐ ๐ฐ๐ฎ๐ป ๐๐ฎ๐น๐ถ๐ฑ๐ฎ๐๐ฒ ๐๐ผ๐บ๐ฒ๐ผ๐ป๐ฒโ๐ ๐ฒ๐
๐ฝ๐ฒ๐ฟ๐ถ๐ฒ๐ป๐ฐ๐ฒ, ๏ฟฝ
carinandersen
Sep 13
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Press Release - Voices United to Save Lives #ASAP
In honor of #AorticDiseaseAwarenessMonth and #AortcDissectionAwarenessWeek, eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness Week In honor of #AorticDiseaseAwarenessMonth and #AortcDissectionAwarenessWeek, eight leading aortic-awareness organizations unite to amplify life-saving stories during Aortic Dissection Awareness WeekGoal: Raising awareness through storytelling, education and collective action Marylan
carinandersen
Sep 13
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It's Aortic Dissection Week and Time to ACE Your Healthcare Journey
THIS #AorticDiseaseAwarenessMonth & #AorticDissectionAwarenessWeek, ITโS TIME TO SHIFT THE DYNAMIC. Not a power struggle. A power balance. For too many people living with aortic disease, healthcare can feel like this: -We explain whatโs wrong. -They tell us what to do. -We nod politely. -We hold back the questions we really want to ask. -We leaveโand sometimes end up right back where we started. Sound familiar? When youโre living with aortic disease, that cycle can be frustra
carinandersen
Sep 12
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It's Aortic Disease Awareness Month-Diagnostic Testing
Hello everyone! Iโm Alvaro, and welcome back to #AorticDiseaseAwarenessMonth. Today weโre going to tackle a question that many patients ask about aortic disease: โ๐ How Do We See Aortic Disease?โ The aorta is the largest artery in the human body, but we cannot diagnose most aortic diseases simply by looking at the patient. Aortic aneurysms, dissections, intramural hematomas, and other aortic conditions can develop silently, sometimes without producing any symptoms until a li
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AHTV- Aortic Athletes Presents Dr. Prakash: Exercise Post Aortic Dissection Research
๐AORTIC DISEASE AWARENESS MONTH SPECIAL EVENT๐ Moderate Exertion Exercise After Aortic Dissection: A New Study September 10, 2026 at 7pm ET Presented by Jack Crowe of Aortic Athletes & Aortic Hope What if exercise after an aortic dissection could be more than just allowedโwhat if it could be an important part of living well after dissection? Join us for a very special conversation about a groundbreaking new study examining the safety of moderate-exertion exercise following
molly
Sep 10
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