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Medical Monday: Cold, Flu & Your Aorta: Whatโs Safe?Navigating the Cold & Flu Aisle
What should you take when you have a cold or the flu if you live with aortic disease? Good morning, Aortic Hope community! My name is Alvaro, and welcome to another Medical Monday! Imagine this: You wake up one morning with a stuffy nose, a sore throat, a headache, and maybe a fever. You head to the pharmacy looking for something to help you feel better. You walk down the cold and flu aisle and see dozens of options: โCold & Flu.โ โDaytime.โ โNighttime.โ โMaximum Strength.โ
Alvaro Jose Martinez Santacruz
4 days ago
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Rare Patient Voice Collaboration
โค๏ธ๐ซ YOUR EXPERIENCE HAS VALUE โ AND YOUR VOICE MATTERS. Aortic Hope is excited to continue our collaboration with Rare Patient Voice, helping connect members of the aortic community with opportunities to share their real-world experiences with researchers. Rare Patient Voice gives patients and caregivers the opportunity to participate in research such as interviews, surveys and other studies โ and participants are paid for their time when they qualify. Why does this collabor
carinandersen
7 days ago
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Bonit Sharma, Speaker at Hackensack University Medical Center
โฅ๏ธAortic Hope Community Liaison Bonit Sharma recently had the opportunity to speak at the Hackensack University Medical Center Symposium, sharing his powerful survivor story, the important lessons he learned along the way, and how those experiences led him to advocacy and his work with Aortic Hope. โฅ๏ธThere is something incredibly impactful about bringing the patient voice into a room of medical professionalsโputting a real person and a real journey behind the disease they tre
carinandersen
Oct 13
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It's National Mental Health Awareness Day
๐ง โค๏ธ MENTAL HEALTH MATTERSโESPECIALLY AFTER AN AORTIC DIAGNOSIS. Aortic disease doesnโt just affect the heart and aorta. It can affect how we think, feel, sleep, cope and live. The fear of another emergency. Anxiety before scans. Trauma after surgery or dissection. Learning to trust your body again. And for caregivers, the emotional weight can be just as real. In recognition of Mental Health Awareness Day, join Aortic Hopeโs Amy Wagner, LCSW-C, as we talk openly about mental
carinandersen
Oct 10
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THANK YOU for an AMAZING Aortic Disease Awareness Month
โค๏ธ๐ซ๐ช๐๐๐ง. ๐. ๐ ๐ข๐ก๐ง๐. ๐ซโค๏ธ As #AorticDiseaseAwarenessMonth comes to a close, all of us at Aortic Hope want to say one very important thing: ๐ง๐๐๐ก๐ ๐ฌ๐ข๐จ. Thank you for reading. Thank you for watching. Thank you for sharing. Thank you for participating. And most importantly, thank you for helping us take aortic disease awareness far beyond our own community. And WOWโฆ you certainly did! ๐ ๐ During September, on Facebook alone: โค๏ธ ๐ข๐๐ฟ ๐๐ถ๐ฒ๐๐ ๐ถ๐ป๐ฐ๐ฟ๐ฒ๐ฎ๐๏ฟฝ
carinandersen
Sep 30
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It's Aortic Disease Awareness Month and Today is about Emotional Health
When the Emergency Is Over, But Your Mind Is Still on Alert Understanding Anxiety, Medical Trauma & PTSD After Aortic Disease When you hear the words aortic aneurysm, aortic dissection, or aortic surgery, life can suddenly feel divided into two parts: before and after. Even when the immediate danger has passed, your mind may not get the message. You may be home from the hospital. Your incision may be healing. Your doctors may tell you that everything looks stable. And yet you
carinandersen
Sep 25
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It's Aortic Disease Awareness Month - Reading Resources
๐โค๏ธ LOVE A GOOD BOOK? Weโve got something for you! For #AorticDiseaseAwarenessMonth, take a look at Aortic Hopeโs Reading Resourcesโa collection created with our community in mind. https://www.aortichope.org/post/reading-resources-by-the-community-for-the-community And this isnโt just a list of medical books! ๐ Poetry that puts the emotions of this journey into words. โค๏ธ Memoirs & personal stories from people who have lived it. ๐ซ Patient guides that help make aortic diseas
carinandersen
Sep 23
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My Journey Back to Open Heart Surgery ~ Carin Andersen
TODAY...IS BIG! Just in time for #AorticDiseaseAwarenessMonth and as we begin the journey into the emotional side of Aortic Disease, we want to premier a "documentary" created by Carin Andersen, Founder and Board Chair of Aortic Hope and President of Think Aorta US. Thank you for your honesty and vulnerability. My Journey Back to Open Heart Surgery ~ Carin Andersen https://youtu.be/Ybe7pNy0vPM โค๏ธ I knew what open-heart surgery looked like. But knowing what to expect didn't pr
carinandersen
Sep 22
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It's Aortic Dissection Awareness Day - Hope Mail
๐It's #AorticDiseaseAwarenessMonth and today is about WHY AORTIC HOPE and HOPE MAIL? Because sometimes, you just need to know someone understands. An aortic diagnosis can leave patients and families feeling overwhelmed, frightened, and alone. Aortic Hope was created by survivors and caregivers who understand that journeyโand believe no one should have to walk it alone. ๐ฌ Introducing ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ ๐ฏ๐ถ๐ท๐ฌ ๐ด๐จ๐ฐ๐ณ is our way of putting that support directly into the han
carinandersen
Sep 20
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Today is Aortic Dissection Awareness Day!
โค๏ธ๐ซ TODAY IS #AORTICDISSECTIONAWARENESSDAY! ๐ซโค๏ธ And during #AorticDiseaseAwarenessMonth, we can think of no better day to share something incredibly specialโฆ ๐ ๐จ๐๐๐๐๐ ๐ฏ๐๐๐โ๐ 8๐๐ ๐จ๐๐๐๐๐ โ๐ป๐ฏ๐ฐ๐บ ๐ฐ๐บ ๐พ๐ฏ๐จ๐ป ๐ฏ๐ถ๐ท๐ฌ ๐ณ๐ถ๐ถ๐ฒ๐บ ๐ณ๐ฐ๐ฒ๐ฌโ ๐๐๐
๐๐โ๐๐๐๐๐๐๐๐๐ ๐๐ถ๐ผ! ๐ And yesโฆa few adorable pets made it in too! ๐พโค๏ธ Aortic dissection is serious. We know that not every story has the ending we desperately wish it did, and today we remember those
carinandersen
Sep 19
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It's Aortic Dissection Awareness Week - Support Groups
YOU DONโT HAVE TO EXPLAIN HERE. Living with aortic disease can sometimes feel like speaking a language that very few people understand: -The fear. -The waiting. -The scans. -The surgeries. -The medications. -The โis this normal?โ moments. -The recovery that doesnโt always look like recovery. And the life after the crisis that no one really prepared you for. ๐ง๐ต๐ฎ๐โ๐ ๐๐ต๐ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ ๐ฆ๐๐ฝ๐ฝ๐ผ๐ฟ๐ ๐๐ฟ๐ผ๐๐ฝ๐ ๐ฎ๐ฟ๐ฒ ๐ฝ๐ฎ๐๐ถ๐ฒ๐ป๐-๐น๐ฒ๐ฑ. Because no one unders
carinandersen
Sep 18
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Aortic Science Made Simple - Exercise May Not Be a No-Go for Aortic Dissection Survivors.
๐งฌ๐ซ NEW BLOG ALERT: AORTIC SCIENCE MADE EASY! Research can be fascinatingโฆbut letโs face it, sometimes reading a published medical study can feel like you need a medical degree just to get through the first paragraph! ๐คฏ Thatโs exactly why we created Aortic Science Made Easyโand our newest medical blogger, Aditi Darodkar, is kicking things off with a topic MANY survivors ask about: ๐ช EXERCISE AFTER AORTIC DISSECTION. Her first article, โExercise May Not Be a No-Go for Aorti
carinandersen
Sep 17
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It's Aortic Dissection Week and Time to ACE Your Healthcare Journey
THIS #AorticDiseaseAwarenessMonth & #AorticDissectionAwarenessWeek, ITโS TIME TO SHIFT THE DYNAMIC. Not a power struggle. A power balance. For too many people living with aortic disease, healthcare can feel like this: -We explain whatโs wrong. -They tell us what to do. -We nod politely. -We hold back the questions we really want to ask. -We leaveโand sometimes end up right back where we started. Sound familiar? When youโre living with aortic disease, that cycle can be frustra
carinandersen
Sep 12
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AHTV- Aortic Athletes Presents Dr. Prakash: Exercise Post Aortic Dissection Research
๐AORTIC DISEASE AWARENESS MONTH SPECIAL EVENT๐ Moderate Exertion Exercise After Aortic Dissection: A New Study September 10, 2026 at 7pm ET Presented by Jack Crowe of Aortic Athletes & Aortic Hope What if exercise after an aortic dissection could be more than just allowedโwhat if it could be an important part of living well after dissection? Join us for a very special conversation about a groundbreaking new study examining the safety of moderate-exertion exercise following
molly
Sep 10
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Medications!
๐๐ซ It is #AorticDiseaseAwarenessMonth and we are discussing MEDICATIONS, MEDICATIONS, MEDICATIONS! ๐ซ๐ If you live with aortic disease, chances are your medicine cabinet has become a little moreโฆ interesting! ๐ Beta blockers? ACE inhibitors? ARBs? Blood thinners? Statins? Diuretics? And what exactly does each one DO? ๐ค Aortic Hope is here to help you make sense of it! ๐ Check out our presentation with Dr. Kristin Watson, Doctor of Pharmacy, where she breaks down common
carinandersen
Sep 9
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The Impact of Aortic Dissection on Your Life and Improving Better Future Patient Care
๐ซ๐ Your Experience Can Help Shape Better Care for Future Aortic Disease Patients ๐๐ซ A group of physicians in New York City conducts an annual survey to better understand how the experience of aortic disease can affect patientsโ mental and emotional health and everyday lives. Your participation is voluntary, and all information collected is anonymous. https://acsurvey.qualtrics.com/jfe/form/SV_d0YkfhJ2NeThQii Whether youโre a long-term survivor or more recently experience
carinandersen
Aug 26
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Itโs Medical Monday!
Welcome everyone to Medical monday, my name is Alvaro and today, weโre going to dive into and debunk a common myth in aortic disease: โIf you have a dissection in your abdominal aorta, you will never have one in your thoracic aorta.โ But is that really true? Letโs take a closer look at the case, the evidence, and what happens to the aorta beyond the segment where the dissection was first diagnosed. For patients living with aortic disease, it can be tempting to think of the ao
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It's Medical Monday
Understanding Bicuspid Aortopathy โ Why Does the Aorta Become Enlarged? Hello everyone! Iโm Alvaro, and welcome back to Medical Monday. Today weโre going to tackle a Bicuspid Aortopathy โ Why Does the Aorta Become Enlarged in Patients with Bicuspid aortic valve ? A bicuspid aortic valve (BAV) is the most common congenital heart valve abnormality, affecting about 1โ2% of the population. Instead of having three valve leaflets, the aortic valve develops with only two.But the va
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Itโs Movement For Movement Monday!
โจ New year. Same body. Still worthy of movement. โจ As we step into a new year, letโs remind ourselves of something powerful: Your body doesnโt need to change to deserve care, respect, or movement. Movement doesnโt have to look a certain way. It doesnโt have to be fast, intense, or impressive. And it definitely doesnโt have to look like anyone elseโs. Maybe itโs ๐ข slow and steady ๐บ joyful and expressive ๐ด intentional rest and recovery ๐ถโโ๏ธ gentle, consistent progress Whate
molly
Jan 5
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Movement for Movement Monday
๐ Movement for Movement Monday ๐ The hardest part isnโt the workout. Itโs the decision to start. It has power over the brain. That tiny moment between thinking about moving and actually moving โ thatโs where the battle happens. So hereโs your trick: ๐ The Two-Minute Rule. Tell yourself, โIโm already doing it.โ Not โI should move,โ but โIโm moving now.โ Because the moment you decide, you shift your brain from hesitation to action. You stop negotiating with yourself โ and ju

jcarambot5
Oct 20, 2025
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