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#ASAP Awareness Saves Aortas Period
#ASAP โ Awareness Saves Aortas Period. Created by Aortic Hope, #ASAP was born from one simple but powerful belief: awareness can save lives. By educating patients, families, caregivers, and healthcare professionals about aortic disease, we can help encourage earlier recognition, faster action, and better outcomes. Join us in spreading awareness because every conversation matters. Like and Share our posts, a simple act that can help save many #ASAP #AwarenessSavesAortasPeriod
carinandersen
5 days ago
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Rare Revolution Magazine featuring Carin Andersen
We are incredibly honored and grateful to share that an article has been written for Rare Revolution Magazine, featuring our Founder and Chair of the Board, Carin Andersen, as she courageously highlights her personal journey with aortic disease and the mission behind both Think Aorta US and Aortic Hope. What began as a life-changing diagnosis became a purpose-driven commitment to ensure that no patient, survivor, caregiver, or family walks this path alone. Through advocacy,
carinandersen
6 days ago
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It's Topic Tuesday!
๐ซ Meet the Specialists Behind the Images: Diagnostic Radiologists ๐ซ When living with aortic disease, there is an important member of your healthcare team you may never meet face-to-face โ but whose expertise plays a critical role in your care: the Diagnostic Radiologist. ๐ Diagnostic radiologists are medical doctors (MD or DO) who complete years of specialized training to interpret medical imaging and help detect, diagnose, and monitor disease. For the aortic community, th
molly56764
6 days ago
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It's Therapeutic Thursday With John Quick and Guest Nicky Jansen
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's guest is Nicky Jansen. To watch on AHTV, Aortic Hope's YouTube channel, click HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). Lifesaving OHS replaced my aortic valve and my aorta was
molly56764
Jun 11
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Summary of ACE Your Healthcare Journey
Today we want to summarize how to ACE Your Healthcare Journey: Itโs About Balance, Not Battle โจ๐ซ Your healthcare journey shouldnโt feel like a power struggle โ it should feel like a partnership. ๐ ACE = Advocate. Communicate. Educate. These three steps help you take an active, confident role in your care while working with your healthcare team โ not against them. ๐
ฐ๏ธ Advocate for your needs ๐
ฒ Communicate openly and honestly ๐
ด Educate yourself and share your full story ๐ก
carinandersen
May 31
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ACE Your Healthcare Journey - EDUCATE
This month we are teaching you how to ACE Your Healthcare Journey and today's focus is E for EDUCATE โจ๐ซ Education is empowerment โ and itโs a vital part of taking control of your aortic journey. ๐ Educate = understanding your condition, your care, and your whole story. Hereโs how to stay informed and empowered: ๐ Learn about your diagnosis, treatments, and medications ๐งฌ Know your family history (#ThinkAortaThinkFamily) ๐ฌ Share both your physical and emotional experiences
carinandersen
May 24
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It's Therapeutic Thursday With John Quick and Guest Molly Thomas
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. This week's guest is Molly Thomas, an Aortic Hope Board Member and Social Media Director. To watch on AHTV, Aortic Hope's YouTube channel, click HERE. โค๏ธIf youโre ready to share your experience and help others on this journey, we would be honored to feature you. SIGN UP HERE. ๐Because healing happens when we talk about it. "In 2006, I suffered an aortic dissection (Type A). L
molly56764
May 21
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ACE Your Healthcare Journey - COMMUNICATE
This month we are focusing on how to ACE Your Healthcare Journey and today;s focus is C for COMMUNICATE โจ๐ซ Communication is the bridge between confusion and clarity โ and itโs a key part of taking control of your healthcare journey. ๐ Communicate = staying connected, asking questions, and speaking up. Hereโs how to strengthen your communication: ๐ฌ Share your symptoms clearly โ even the small changes ๐ฑ Use patient portals, calls, or emails to stay in touch โ Ask questions
carinandersen
May 17
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Mental Health Awareness Month - Patient Guides
๐ง ๐ซ Mental Health Awareness Month: Knowledge Can Ease the Weight ๐ซ๐ง When youโre living with aortic disease, the mental and emotional toll can feel just as heavy as the physical side. The unknowns, the questions, the โwhat ifsโ โ itโs a lot. ๐ One simple way to ease that stress? ๐ Download one of Aortic Hopeโs Patient Guides. Our guides โ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐ฒ๐ฎ๐๐ฒ: ๐ง๐ต๐ฒ ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐๐๐ถ๐ฑ๐ฒ and ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐๐ฒ๐ฐ๐๐ถ๐ผ๐ป: ๐ง๐ต๐ฒ ๐ฃ๐ฎ๐๐ถ๐ฒ๐ป๐ ๐๐๐ถ๐ฑ๐ฒโ
carinandersen
May 15
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Think Aorta Think Family
Think Aorta Think Family Aortic Dissections are rare but Aortic Disease is more common than you think. Talk to your family about the family medical history. When in doubt, check it out. No matter how you say it or rephrase it, two simple words are saving so many lives. THINK AORTA! #AorticHope #AorticDiseaseAwareness #AortaEd #ASAP
carinandersen
May 14
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ACE Your Healthcare Journey - ADVOCATE
This month we are focusing our attention on helping you ACE Your Healthcare Journey and today is about ADVOCATING. ๐ซโจ ACE Your Healthcare Journey: A is for ADVOCATE โจ๐ซ Advocating for yourself isnโt always easy โ but itโs one of the most powerful things you can do on your aortic journey. ๐ Advocate = taking an active role in your care. Hereโs how you can start: ๐ Keep copies of your records, scans, and test results โ Write down questions before appointments ๐ฅ Bring a trus
carinandersen
May 10
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Patient Awareness Posters during National Mental Health Month
๐ซ๐ Looking for a meaningful way to ease the emotional toll of aortic disease? ๐๐ซ One powerful step is helping others feel less alone โ and you can do that with our FREE Patient Awareness Posters. https://forms.office.com/r/WqrXNG3cAw ๐ฆ Each pack includes 10 posters ๐ Displayed in exam rooms across the country ๐ฑ Provides easy access to support groups & patient guides These posters donโt just share information โ they create connection, spark conversations, and help patie
carinandersen
May 8
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National Nurse Appreciation Day
๐ฉบ๐ Happy National Nurse Appreciation Day! ๐๐ฉบ Today, Aortic Hope proudly celebrates the incredible nurses who stand beside our community every step of the way. From the very first moments of diagnosis to surgery, recovery, and lifelong management, nurses are often the steady, compassionate presence patients and caregivers rely on most. You are the ones who listen, comfort, educate, advocate, and act โ often all at once. ๐ซIn the aortic community, your role is especially vi
carinandersen
May 6
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It's Mental Health Awareness Month
๐ง ๐ซ May is National Mental Health Month ๐ซ๐ง At Aortic Hope, we recognize that aortic disease doesnโt just affect the body โ it can deeply impact your mental and emotional well-being too. ๐ Experiences like diagnosis, surgery, and recovery can bring on anxiety, fear, or even PTSD. And in our community, those feelings are more common than many realize โ and just as important to address as physical health. Thatโs why weโre sharing this important conversation from AHTV ๐ฅ feat
carinandersen
May 1
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It's a First Friday Fundraiser
๐๐ Show Your Support Wherever You Go! ๐๐ At Aortic Hope, awareness doesnโt stop at events โ it travels with you! Our Aortic Hope Car Magnets are a simple, powerful way to spark conversations, honor survivors, remember loved ones, and spread life-saving awareness about aortic disease everywhere you drive. โจ For just a $10 donation, you can: โข Turn your car into a moving message of hope โข Help raise awareness about aortic dissection & aneurysm โข Support Aortic Hopeโs educat
carinandersen
May 1
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It's Therapeutic Thursday! Featuring John Quick and guest Molly Thomas
๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. First Therapeutic Thursday, May 21 at 12p ET with guest Molly Thomas. To watch, click HERE. Weโre inviting ๐ฌ๐ข๐จ to be a guest on our pre-recorded series and share how aortic disease โ whether an aneurysm, valve disease, or dissection โ has impacted you mentally and emotionally. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐๐ฝ๐ฎ๐ฐ๐ฒ ๐๐ผ ๐ฏ๐ฒ ๐ฟ๐ฒ๐ฎ๐น. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐ฐ๐ต๐ฎ๐ป๐ฐ๐ฒ ๐๐ผ
molly56764
Apr 30
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It's World Book Day!
๐๐ซ๐๐ฎ๐ฝ๐ฝ๐ ๐ช๐ผ๐ฟ๐น๐ฑ ๐๐ผ๐ผ๐ธ ๐๐ฎ๐ ๐ณ๐ฟ๐ผ๐บ ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ผ๐ฝ๐ฒ!๐ซ๐ Today we celebrate the power of stories โ and in our community, those stories are more than wordsโฆ they are strength, survival, and hope. ๐ Many of our incredible community members have turned their journeys into meaningful works of inspiration โ sharing their experiences to educate, comfort, and uplift others. ๐ From personal storiesโฆ ๐ To contributions in ๐๐ผ๐ฟ๐๐ถ๐ฐ ๐๐ถ๐๐๐ฒ๐ฐ๐๐ถ๐ผ๐ป: ๐ง๐ต
carinandersen
Apr 23
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It's Share with You Sunday
๐ซโจ Relaxation Is Not a Luxury โ Itโs Part of Your Care โจ๐ซ Living with aortic disease can bring stress, anxiety, and constant โwhat ifโ thoughts. But hereโs something we want you to remember: relaxation is essential. ๐ Managing stress helps support healthy blood pressure, eases tension in the body, and gives your mind a much-needed break. Itโs not about doing nothing โ itโs about healing intentionally. Thatโs why weโre excited to share relaxation techniques from Katie Mor
carinandersen
Apr 12
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It's an April Fundraiser
๐ซ๐ Every Dollar Makes a Difference ๐๐ซ At Aortic Hope, thereโs something truly special about every donation โ no matter the size. Because hereโs the truth: itโs not about the amountโฆ itโs about the impact. โจ Whether itโs $1, $5, or more, every dollar helps us continue to: ๐ Provide life-saving education ๐ฌ Offer support groups for patients & caregivers ๐ฅ Host free events and programs ๐ Send care packages to those facing surgery ๐ค Build a community that truly understand
carinandersen
Apr 10
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Be our Guest on Therapeutic Thursdays
๐Therapeutic Thursday โ ๐ฌ๐ผ๐๐ฟ ๐ฆ๐๐ผ๐ฟ๐ ๐ ๐ฎ๐๐๐ฒ๐ฟ๐๐ ๐Join us for Therapeutic Thursday, hosted by community member, survivor, and therapist John Quick. Weโre inviting ๐ฌ๐ข๐จ to be a guest on our pre-recorded series and share how aortic disease โ whether an aneurysm, valve disease, or dissection โ has impacted you mentally and emotionally. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐๐ฝ๐ฎ๐ฐ๐ฒ ๐๐ผ ๐ฏ๐ฒ ๐ฟ๐ฒ๐ฎ๐น. โจ๐ง๐ต๐ถ๐ ๐ถ๐ ๐๐ผ๐๐ฟ ๐ฐ๐ต๐ฎ๐ป๐ฐ๐ฒ ๐๐ผ ๐ฏ๐ฒ ๐ต๐ฒ๐ฎ๐ฟ๐ฑ. โจ๐ง๐ต๐ถ๐ ๐ถ
carinandersen
Apr 9
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