💙 Support, Delivered Right to Your Phone At Aortic Hope, our mission is to Spread Hope. Create Awareness. Provide Support. And we know that support for aortic disease goes far beyond physical health. That’s why we’ve partnered with 𝗛𝗲𝗹𝗽 𝗧𝗲𝘅𝘁𝘀 to provide one 𝗙𝗥𝗘𝗘 month of private, personalized mental health and grief support delivered directly through text messages. This support may be helpful if you’re navigating the emotional impact of a health journey, caregiv

AORTIC DISEASE GLOSSARY Because sometimes the hardest part of an aortic diagnosis is understanding the language. A Acute Aortic Syndrome (AAS) A group of sudden, potentially life-threatening conditions involving the aorta, including aortic dissection, intramural hematoma, and certain forms of aortic rupture. AneurysmAn abnormal enlargement or bulging of the aorta. AAA — Abdominal Aortic Aneurysm An aneurysm located in the abdominal portion of the aorta. Aortic Arch The curved

When Aortic Anxiety Takes Over: Using Your Five Senses to Find Your Ground ~(Inspired by Katie Moran, LMT) Living with aortic disease can sometimes make it difficult to quiet your mind. Maybe you're waiting for your next CT scan. Perhaps you noticed a new sensation in your chest or back. Your blood pressure was higher than usual. An upcoming appointment is on your mind. Or maybe nothing happened at all—you simply started thinking, "What if?" For people who have experienced an

🫀💙 Your Experience Can Help Shape Better Care for Future Aortic Disease Patients 💙🫀 A group of physicians in New York City conducts an annual survey to better understand how the experience of aortic disease can affect patients’ mental and emotional health and everyday lives. Your participation is voluntary, and all information collected is anonymous. https://acsurvey.qualtrics.com/jfe/form/SV_d0YkfhJ2NeThQii Whether you’re a long-term survivor or more recently experience

🫀💙 Explore the Global Heart Hub Research Portal 💙🫀 Aortic Hope is proud to share this valuable resource from our friends at Global Heart Hub, created to help patients become informed and active partners in cardiovascular research. The portal provides easy-to-understand information about: 🔬 Different types of cardiovascular research 🧪 Clinical trials and how to participate 🗣️ Why the patient voice matters in research 🌎 Opportunities to find clinical trials relevant to

🔥🫀 It’s Time to Shift the Dynamic 🫀🔥 We want to share something powerful — not a power struggle, but a true power balance. For so many of us, healthcare has looked like this: 1️⃣ We explain what’s wrong 2️⃣ They tell us what to do 3️⃣ We nod politely 4️⃣ We hold back our real questions 5️⃣ We end up back where we started Sound familiar? When you’re living with aortic disease, that cycle isn’t just frustrating — it can feel overwhelming. And you deserve better. ✨ It’s time

💊 Medication Matters! 💊 Below is a presentation all about the common medications prescribed to aortic disease patients. 🫀 Learn how these treatments help protect your aorta, manage blood pressure, and reduce complications. Knowledge is power—let’s stay informed together! 💙Click the attachment below to view Dr. Kristin Watson's easy-to-understand presentation on Common Medications for Aortic Disease. This includes many if not all of the various medications that community

SHARED FROM THE COMMUNITY…FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME Aortic Hope has compiled for you, a list of thoughts, questions and items in preparation for and after Open Heart Surgery: 1. It is strongly suggested to have a loved one or friend with you during your consultation or pre-op appointment. Having another “set of ears” during such a scare and emotional time will help retain answers to many of your questions. Another person who cares about you being

Aortic Disease Support Groups SHARED FROM THE COMMUNITY…..FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME * Aortic Hope cannot vouch for the accuracy of information posted within the groups mentioned below. Please note, there are groups on Facebook and the Web dedicated to Marfan Syndrome, Ehlers-Danlos Syndrome and Loeys-Dietz Syndrome While Aortic Hope offers: Opportunities for you to participate in live interviews with physicians, surgeons, therapists, lawyers etc

🌎As a globally-recognized organization, we are always happy to support THINK AORTA. 🎉THINK AORTA US created the Global Think Aorta Think Family campaign! ♥️Aortic Dissections are rare but Aortic Disease is more common than you think. ⭐Share and learn about your family medical history. There are some medical conditions that could put you at a higher risk for Aortic Disease. 👇It's important to remember that: ♥️Aortic disease runs in families. ♥️It's more common than you thin

Looking for great books to read? Interested in reading books written by community members, for the community? Check out these books and let us know what you think. We will be adding to this list as more survivors and caregivers become authors! Aortic Disease: The Patient Guide FREE Download This guide is here to help you and your loved ones understand what comes next after a diagnosis of aortic disease. Every journey is unique—shaped by the type of condition, timing of di

Did You Know... Hope Mail started with just 4 people who received hand knitted heart pillows... Now, we have over 300...

❤️ Over the last year, we have asked the community to contribute to our "Musings" Jar by commenting with their personal favorite...

Additional information regarding the information below may be found by clicking here. "Doctors and scientists have only identified about...

Please visit https://www.thinkaorta.us for more information The Think Aorta US campaign is brought to you by Aortic Bridge, Aortic Hope and The John Ritter Foundation for Aortic Health.