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Time to ACE Your Healthcare Journey
🔥🫀 It’s Time to Shift the Dynamic 🫀🔥 We want to share something powerful — not a power struggle, but a true power balance. For so many of us, healthcare has looked like this: 1️⃣ We explain what’s wrong 2️⃣ They tell us what to do 3️⃣ We nod politely 4️⃣ We hold back our real questions 5️⃣ We end up back where we started Sound familiar? When you’re living with aortic disease, that cycle isn’t just frustrating — it can feel overwhelming. And you deserve better. ✨ It’s time
carinandersen
Feb 26


2025 Common Medications for Aortic Disease Patients
💊 Medication Matters! 💊 Below is a presentation all about the common medications prescribed to aortic disease patients. 🫀 Learn how these treatments help protect your aorta, manage blood pressure, and reduce complications. Knowledge is power—let’s stay informed together! 💙Click the attachment below to view Dr. Kristin Watson's easy-to-understand presentation on Common Medications for Aortic Disease. This includes many if not all of the various medications that community
carinandersen
Oct 12, 2025


2026 Pre/Post Surgical Suggestions
SHARED FROM THE COMMUNITY…FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME Aortic Hope has compiled for you, a list of thoughts, questions and items in preparation for and after Open Heart Surgery: 1. It is strongly suggested to have a loved one or friend with you during your consultation or pre-op appointment. Having another “set of ears” during such a scare and emotional time will help retain answers to many of your questions. Another person who cares about you being
carinandersen
Oct 12, 2025


2026 Survivor/Caregiver Resources
Aortic Disease Support Groups SHARED FROM THE COMMUNITY…..FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME * Aortic Hope cannot vouch for the accuracy of information posted within the groups mentioned below. Please note, there are groups on Facebook and the Web dedicated to Marfan Syndrome, Ehlers-Danlos Syndrome and Loeys-Dietz Syndrome While Aortic Hope offers: Opportunities for you to participate in live interviews with physicians, surgeons, therapists, lawyers etc
carinandersen
Oct 12, 2025


Aortic Hope's Collaboration with Rare Patient Voice
We are excited to announce our continued collaboration with Rare Patient Voice. Rare Patient Voice, LLC provides patients and caregivers...
carinandersen
Oct 7, 2025


Think Aorta Think Family
🌎As a globally-recognized organization, we are always happy to support THINK AORTA. 🎉THINK AORTA US created the Global Think Aorta Think Family campaign! ♥️Aortic Dissections are rare but Aortic Disease is more common than you think. ⭐Share and learn about your family medical history. There are some medical conditions that could put you at a higher risk for Aortic Disease. 👇It's important to remember that: ♥️Aortic disease runs in families. ♥️It's more common than you thin
carinandersen
Jul 19, 2025


Reading Resources....by the Community, for the Community
Looking for great books to read? Interested in reading books written by community members, for the community? Check out these books and...
carinandersen
Sep 8, 2024


Help Texts Resource
At Aortic Hope our goals are to spread hope, create awareness, and provide support for those impacted by aortic disease. That's why we've...
carinandersen
Aug 8, 2024


Relaxation Techniques
Relaxation and Grounding Techniques...Katie Moran, LMT The largest concept to integrate is that we can learn to live relaxed. Living a...
carinandersen
Dec 7, 2023


Care Package Requests
Welcome to Aortic Disease Awareness Month! There will be a lot of information to cover this month because it is impossible to share with you everything about aortic disease in one day or one week. Today, let's start off easy.❤️If you or your loved one has recently (within the last month) had emergency surgery or is scheduled for surgery and you would like to have an Aortic Hope Care Package, complete this form and we will send it within 2 after receipt of the form. Hopefully
carinandersen
Dec 6, 2023


Hope Mail
Did You Know... Hope Mail started with just 4 people who received hand knitted heart pillows... Now, we have over 300...
carinandersen
Dec 5, 2023


Musings...Contributed by the Community, for the Community
❤️ Over the last year, we have asked the community to contribute to our "Musings" Jar by commenting with their personal favorite...
carinandersen
Jun 23, 2023


John Ritter Research Program for Genetic Testing
Additional information regarding the information below may be found by clicking here. "Doctors and scientists have only identified about...
carinandersen
May 23, 2023


Think Aorta
Please visit https://www.thinkaorta.us for more information The Think Aorta US campaign is brought to you by Aortic Bridge, Aortic Hope and The John Ritter Foundation for Aortic Health.

~HQ
Nov 4, 2019
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