We are so excited to announce another sponsor for 2025-2026! Heart Valve Voice US, a patient advocacy, non-profit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for affected. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy or

💊 Medication Matters!  💊 Below is a presentation all about the common medications prescribed to aortic disease patients.  🫀 Learn how these treatments help protect your aorta, manage blood pressure, and reduce complications. Knowledge is power—let’s stay informed together! 💙Click the attachment below to view Dr. Kristin Watson's easy-to-understand presentation on Common Medications for Aortic Disease. This includes many if not all of the various medications that community

SHARED FROM THE COMMUNITY…FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME Aortic Hope has compiled for you, a list of thoughts, questions and items in preparation for and after Open Heart Surgery: 1. It is strongly suggested to have a loved one or friend with you during your consultation or pre-op appointment. Having another “set of ears” during such a scare and emotional time will help retain answers to many of your questions. Another person who cares about you being

Aortic Disease Support Groups SHARED FROM THE COMMUNITY…..FOR THE COMMUNITY CONNECTING HEARTS…ONE BEAT AT A TIME * Aortic Hope cannot vouch for the accuracy of information posted within the groups mentioned below. Please note, there are groups on Facebook and the Web dedicated to Marfan Syndrome, Ehlers-Danlos Syndrome and Loeys-Dietz Syndrome While Aortic Hope offers: Opportunities for you to participate in live interviews with physicians, surgeons, therapists, lawyers etc

Edwards Lifesciences is one of our proud supporters for 2025-2026. “Edwards Lifesciences is the global leader of patient-focused medical...

We are excited to announce our continued collaboration with Rare Patient Voice. Rare Patient Voice, LLC provides patients and caregivers...

Looking for great books to read? Interested in reading books written by community members, for the community? Check out these books and...

At Aortic Hope our goals are to spread hope, create awareness, and provide support for those impacted by aortic disease. That's why we've...

When Your Symptoms Are Ignored or Misdiagnosed. Many of the aortic dissection survivors in our community were lucky enough to go to a...

Relaxation and Grounding Techniques...Katie Moran, LMT The largest concept to integrate is that we can learn to live relaxed. Living a...

❤️Beginning in 2023, if you or your loved one has emergency surgery or is scheduled for surgery and you would like to have an Aortic Hope...

Did You Know... Hope Mail started with just 4 people who received hand knitted heart pillows... Now, we have over 300...

❤️ Over the last year, we have asked the community to contribute to our "Musings" Jar by commenting with their personal favorite...

Additional information regarding the information below may be found by clicking here. "Doctors and scientists have only identified about...

Looking for a way to give back to the community and have your voice heard in the process? If so, check out SAVVY. What is Savvy and why...