Updated: Sep 26
Aortic Disease Support Groups
SHARED FROM THE COMMUNITY…..FOR THE COMMUNITY
CONNECTING HEARTS…ONE BEAT AT A TIME
*Aortic Hope cannot vouch for the accuracy of information posted within the groups mentioned below.
Please note, there are groups on Facebook and the Web dedicated to Marfan Syndrome, Ehlers-Danlos Syndrome and Loeys-Dietz Syndrome
While Aortic Hope offers:
Opportunities for you to participate in live interviews with physicians, surgeons, therapists, lawyers etc on our AHTV YouTube channel
FREE DOWNLOAD of Aortic Dissection: The Patient Guide to help you navigate your recovery
Survivor videos for inspiration and education
FREE Hope Mail care packages every month
A partnership with Think Aorta US and Rock from the Heart to help you Listen, Learn, Lean and Love
FREE contests with awesome prizes
Live virtual support groups
Sister pages providing closed support to survivors or caregivers (places where you can share your concerns, ask questions, share your accomplishments etc)
We feel strongly that there are MANY wonderful Facebook pages where you can receive support. There are also other 501c3 charities like us that work tirelessly to provide education, research, awareness, support and hope, through the generosity of donations.
There is room for everyone to help!
Wherever you go for your support, we truly appreciate that you are here...that you have "liked" us, "follow" us and "share" our information.
FACEBOOK SUPPORT PAGES: (these are only some of what exist)
Abdominal Aortic Aneurysm Awareness
Aortic Aneurysm and Aortic Valve Disease Support and Education Connection
Aortic Aneurysms, Heart and Cardiovascular Diseases In African Americans
Aortic Dissection Support Group
Aortic Dissection Surgery Support & Education Group
Aortic Dissection Survivors and Family, Friends.
Aortic Dissection Survivors-Pregnancy Related
Aortic Dissection US
Aortic Dissection Support Group for Women
Aortic Health Unlimited
Aortic Hope Caregiver Private Forum
Aortic Hope Grief Only Private Forum
Aortic Hope Private Forum
Ascending Aortic Aneurysm Support Group
Dissection Life & Cardiovascular Health
Living Life With An Abdominal Aneurysm
Survivors of Aortic Dissection
The 2% Club - Aortic Aneurysm Survivors
NON PROFIT ORGANIZATIONS: (not necessarily a complete list)
Each of these groups have slightly different goals. Some provide an open forum for support and discussion, others are tailored towards a specific gender or race. Some provide information pertaining to fundraising events and some put together events for survivors and caretakers to meet and celebrate. A couple of these groups have very beneficial information pertaining to genetic testing and the latest in medical research. There is even a group dedicated to posting anything artistic or any hobbies you are doing since dissecting.