Aortic Hope's Live Q&A about Marfan Syndrome with Ryan Rodarmer Saturday, February 11th at 7pm EST.
Come join Aortic Hope and Ryan Rodarmer, Director of Genetic Education as he shares the ins and out of Marfan Syndrome for Marfan...
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Spreading Hope | Creating Awareness | Providing Support
Our Impact
Since Aortic Hope was founded in 2016, we have helped to provide support to over 4000 individuals within the community and we are still growing! Initially, our Hope Mail Care Packages were sent to 30 people and now that program has grown by almost 500%! Our live educational videos are spanning the globe! We have been heard over Sirius XM and seen on The Donna Drake Show!
4000+
FOLLOWERS AND SUPPORTERS
In addition to a strong online presence, our community outreach is enabling us to expand our mission globally.
45+
GLOBAL PRESENCE AND GROWING
Other than the United States, Aortic Hope has reached individuals in Canada, Australia, Sweden, UK, India, Angola and more!
5200+
HOSPITAL REACH
In collaboration with the non-profit Think Aorta US, Aortic Hope has a presence in over 5200 hospitals in the US!
Our Mission
Aortic Hope is a community of Aortic Disease patients, survivors, and caregivers. We Spread Hope, Create Awareness and Provide Support during the recovery and management of aortic disease.
Our Programs
Aortic Hope strives to Spread Hope, Create Awareness and Provide Support in a variety of ways.
Donations are used for the programs listed below and so much more!
If you are interested in becoming a Hope Ambassador, assisting with the Tableside Information Card Program or if you are a Physician and would like information to distribute to your patients, please click the button "Learn More" below.
In collaboration with Mended Hearts, Aortic Hope aims to refer community members to The Mended Hearts , with the goal being to receive training and become accredited to provide other community members support while recovering from and living with aortic disease. This includes survivors and caregivers.
Interested participants when applicable, will either be connected immediately to another survivor or caregiver or offered an opportunity to become a member of Mended Hearts where they may learn how to provide one-on-one support via telephone or in-person (hospital/clinic setting).
Get Involved
Would you like to be involved with Aortic Hope by Spreading Hope, Creating Awareness or Providing Support? Maybe you would be interested in receiving some Hope in the mail? Please take a look at some options below, we would love to hear from you!
Hope Ambassador
Would you like to spread hope, create awareness, and provide support with us?
Survivor Series
Share your amazing story of survival, or as a caregiver, with the community.
Tableside Information Card
If you would like to have these in your doctor’s office, please click the Sign-Up button.
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