AORTIC HOPE
Spreading Hope...
Creating Awareness...
Providing Support...
Our Impact
Since Aortic Hope was founded in 2016, we have helped to provide support to over 1000 individuals within the community and we are still growing! Initially, our Hope Mail Care Packages were sent to 30 people and now that program has grown by almost 500%! Our live educational videos are spanning the globe!
1600+
FOLLOWERS AND SUPPORTERS
In addition to a strong online presence, our community outreach is enabling us to expand our mission globally.
45+
GLOBAL PRESENCE AND GROWING
Other than the United States, Aortic Hope has reached individuals in Canada, Australia, Sweden, UK, India, Angola and more!
$5000+
FUNDS RAISED IN OUR FIRST YEAR
100% of your donated dollars are turned around and given back to the community through our initiatives.
Our Mission
Aortic Hope is a community of Aortic Disease patients, survivors, and caregivers. We Spread Hope, Create Awareness and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.
Our Programs
Aortic Hope strives to Spread Hope, Create Awareness and Provide Support in a variety of ways.
Donations are used for the programs listed below and so much more!
If you are interested in becoming a Hope Ambassador, assisting with the Tableside Patient Advocacy Program or if you are a Physician and would like folders to distribute to your patients, please click the button "Learn More" below.
We are now offering our "Heart to Heart" program. Aortic Hope's Heart to Heart program aims to connect people, on a one-to-one basis, with the goal being to provide each other support while recovering from and living with aortic disease. This includes survivors and caregivers.
ONLINE SUPPORT GROUPS
Aortic Hope's goal is to be seen as the post-operative/patient advocacy group to turn to for support. We provide Hope, Support, and Awareness to the community. By providing virtual support groups, we are by no means inferring we are therapists or doctors. We are only providing the means in which individuals from around the world can connect "face-to-face” in a safe, secure environment without leaving their homes.
*Please click the events button above for dates/times
LIVE Q&a EVENTS
Q&A events are live interviews on facebook involving physicians, surgeons, mental health therapists, and more. Individuals are able to interract by listening to topics pertaining to Aortic Disease and ways to manage it. Community members are able to ask questions in real time or submit them for follow-up later.
*Please click the events button above for dates/times
TABLESIDE PATIENT ADVOCACY PROGRAM
As a Hope Ambassador, you will may be working with physicians and hospitals, assist during fundraisers or speaking engagements. This will help provide emotional support to patients who have survived an aortic dissection or who will be undergoing open heart surgery for an aortic repair. Folders are provided to newly diagnosed patients with Aortic disease. These folders contain information such as Facebook support group sites, the critical role mental health therapy plays in a patient’s life, and the importance of cardiac rehab (if applicable).
*Please click the "Learn More" button above
heart to heart program
Aortic Hope's Heart to Heart program aims to connect people to provide each other support while recovering from and living with aortic disease. This includes survivors and caregivers. Participants must be 18 years or older and may include caregivers, dissection and aneurysm survivors. If you are interested in providing support to someone in an one-to-one basis, or if you are looking for support, this is the program for you!
*Please click the "Learn More" button above
Press/Testimonials
JULY 2018
BIG ANNOUNCEMENT: IT'S OFFICIAL!
Aortic Hope is an official 501(c)(3) charity. Any donations given to Aortic Hope may be tax deductible retroactive to June 2017! Click the picture below and enjoy the video!
https://video214.com/play/3N1JkMqXVNyDy8R1bHqAYg/s/dark
JULY 2018
📣Aortic Hope is excited to announce something that has little to do with us and EVERYTHING to do with YOU and the COMMUNITY! Help Create Awareness within the community and get everyone thinking about their AORTA! 🎗️With a $10 donation, you can get yours today! They will be mailed starting the third week of July.🎗️
(don't forget to include your mailing address)
JULY 2018
Aortic Hope is excited to announce that we were nominated for: Best In Show: Facebook at WEGO Health!!!
Facebook is a community all its own. Over the past few years, it has transformed from a place for a personal profile to a real hub for discourse, conversation, and community. Who has the best Facebook Group or Page of anyone you know? Who utilizes Facebook Lives to amplify their patient advocacy? The winner of this category has balanced the ever-changing interface of Facebook and has turned it into an opportunity to reach more people. This Patient Leader fosters an environment where people want to "Like" and interact. They may have other social media sites, but he or she really utilizes all the tools Facebook has to offer and shows how it can be used for good!
WEGO Health is a mission-driven company connecting health care with the experience, skills and insights of Patient Leaders.
WEGO is the world’s largest network of over 100k Patient Leaders, working across virtually all health conditions and topics. Their network collaborates with pharmaceutical and life sciences companies, agencies, consultancies, startups and all types of organizations across healthcare.
WEGO Health offers enterprise and on-demand solutions that allow organizations to leverage the patient experience and expertise in the design, development and promotion of their products and services.
october 2018
“AH has given me an outlet to speak to other survivors. I also love the live chats. The admins are so dedicated and caring. I will be a part of this group until the day I die. I love these people. they are my family by choice not by blood. “
~Lisa (Survivor)
“Very informative. Great support. Uplifting messages.”
~Amy (Caregiver)
SEPTEMBER 2018
“People learn the different forms of the disease. The name is perfect!”
~Ed (Survivor)
AUGUST 2018
“Great site for us heart warriors. Thanks for creating it and helping others of how its important to be aware”
~Terry (Survivor)
may 2018
"Aortic Hope....we need more groups like this in the world."
~Amy (Caregiver)
APRIL 2018
Aortic Hope is..."Awesome! Filled with great information! Great people. People from the group reached out to me and that's important."
~Craig (Survivor)
March 2018
"This group educates and increases awareness of aortic disease and allows others to appreciate the dramatic impact it can have on the lives of those afflicted and their loved ones. Through our work together we can turn many of these would-be emergency operations into safer elective procedures. We can educate the family of patients with aortic disease to get screened with echocardiography and CT or MRI imaging. And we can support those who carry these diagnoses along the way."
~Ben Youdelman, MD, Director of the Maimonides Aortic Center, Brooklyn, New York
FEBRUARY 2018
"Today was my 4 year aortaversary!!! So very thankful for each day I am given! Blessed for this community of people who have been through the same life altering events!!! And grateful for a 2nd chance!!!"
~Terah (Survivor)
FEBRUARY 2018
"Aortic Hope is all it's name says and more! Giving hope through inspiration, education & genuine concern. They have created a "World-Wide" community of comradery among Aortic Survivors, Caregivers & Families! There's always room for you, too!"
~Teresa (Caregiver)
Get Involved
Would you like to be involved with Aortic Hope by Spreading Hope, Creating Awareness or Providing Support? Maybe you would be interested in receiving some Hope in the mail? Please take a look at some options below, we would love to hear from you!
survivor series
Share your amazing story of survival, or as a caregiver, with the community.
Hope mail
Sign up to receive some Hope in the mail, at no cost to you!
Make a Donation
www.paypal.me/aortichope
