In our last article, we explored Loeys-Dietz syndrome , a lesser-known but aggressive connective tissue disorder that raises the risk for...

When we think of genetic aortic conditions, Marfan syndrome often comes to mind—but it’s not the only one. Loeys-Dietz syndrome (LDS) is...

💙 Movement for Movement Monday 💙 Upping Your Steps, Uplifting Your Spirit!! Every step counts. Whether it's a few extra steps around the house, a short walk to the mailbox, or a slow stroll in the sunshine—movement adds up. Some days, getting out of bed is a win. Other days, you might surprise yourself with how far you go. The goal isn’t perfection—it’s progress. It’s showing up for your body and honoring the strength you do have, even if it looks different than before. Thi

Welcome back for Part 2 of our Genetics 101 8-week blog series! This week, Ryan Rodarmer dives deep into the world of Marfan Syndrome...

⭐️📢Big shout out to Jason Bazelow! Think Aorta would like to give a shout out to Jason Bazelow who has committed to volunteering with TAUS. Today, he will share his story and highlight the importance of Thinking Aorta at the NC EMS expo. TAUS is achieving significant milestones within the EMS community through Jason Bazelow's volunteer efforts. Then on May 13-18th he will be at Tidewater Healthcare Expo! To check it out click HERE. #jasonbazelow #thinkaorta #thinkaortaus...

Welcome to Week 1 of our 8-week Genetics 101 series with Ryan Rodarmer , where we explore how genetics can influence your risk for aortic...

The sun is shining, the flowers are blooming, and something about spring just makes it feel like a fresh start. 🌱☀️ There’s a quiet strength in this season—everything that once looked still or lifeless is now waking up, stretching toward the light, and growing strong again. Your body can do the same. Even small, intentional movements—walking in the sunshine, stretching on your porch, or moving through your favorite gentle routine—can spark energy and hope within you. You wer

Small Movements Add Up!! Good news: You don’t need to deadlift your couch to be active. In fact, the small things—stretching while...

Other than work... What do you do? Breaking news: Your body is smarter than you think … but also kinda lazy. It adapts to the movements...

Make the Most of the Good Days There are days when moving feels impossible—and I get it. If you’re an aortic dissection survivor, you know exactly what I mean. Some days, even getting out of bed feels like a victory. Other days, we find ourselves back in the hospital, facing tests, procedures, and uncertainty. It’s a cycle that many of us have come to accept as part of life. But then there are the good days—the ones where we wake up with a little more energy, a little less pa

At Aortic Hope, we believe that movement is more than just exercise—it’s a commitment to taking care of your body and mind with intentional steps toward better health. That’s why we encourage everyone to participate in Movement for Movement Monday, a chance to embrace movement in a way that works for you. Movement doesn’t have to mean running a marathon or lifting heavy weights. It can be as simple as stretching in the morning, taking a short walk, dancing to your favorite so

Sitting Is The New Smoking A Movement for MOVEMENT Monday Check-In: If you haven't committed to 20 minutes of intentional movement per...

A Movement for MOVEMENT Monday Check-In: Keep the Momentum! You’ve started strong—How’s it going? It’s been two weeks since we set our movement goal for 20 minutes of daily INTENTIONAL MOVEMENT. Are you doing it all at once or breaking it up? Remember, every little bit counts! Have you found your groove yet? SHARE WITH US ON SOCIAL MEDIA! If not, it’s okay. Start fresh today. We will continue to check in with you every other Monday. Use hashtag: #MovementForMovement Motivatio

Happy New Year, Survivors! The start of a new year is the perfect time to join us at Aortic Hope for our Movement for Movement Mondays. Every other Monday, starting January 6th, we will check in with you and post motivational tips and tricks to get your body moving! It is crucial for us, as survivors, to keep moving and not give up! Focus on YOU and set a goal that protects your health and uplifts your spirit. Let’s make intentional movement part of our daily lives this year!

Most of us view our relationship with our clinicians as: We tell them what is wrong They tell us what to do We say yes We keep our thoughts and opinions to ourselves We feel unwell again Refer back to 1. Upon receiving a diagnosis of aortic disease, it's natural to feel overwhelmed. The old model of communicating can be recipe for disaster. The first step to success is to learn how to ACE (Advocate, Communicate and Educate) your healthcare journey. The healthcare journey is

In case you missed the first announcement... We are beyond excited to announce the following joint statements from Think Aorta and The...

We are beyond excited to announce the following joint statements from Think Aorta and The Marfan Foundation regarding the global...

Come join Aortic Hope and Think Aorta US at the 2024 Aortic Bridge Walk across the Brooklyn Bridge for Aortic Disease Awareness....

Today for Therapeutic Thursday, let’s talk about healing. Healing is a profound process that involves acknowledging, accepting, and integrating our experiences. Whether it’s physical or mental, the journey toward healing is unique for each person. Here are some insights on healing: Acceptance: Denial of illness is often the biggest barrier to healing. When we gradually accept our condition—whether it’s mental illness or any other health issue—we open the door to recovery. It’

Today for Therapeutic Thursday, let’s talk about Anxiety, which likely plays a role in your life as an aortic patient or as a caregiver. Challenge Negative Thoughts: Question the validity of anxious thoughts. Practice Deep Breathing: Inhale for 4 counts, exhale for 4 counts. Use Aromatherapy: Try calming scents like lavender or chamomile. Exercise: Move to reduce stress and boost your mood. Make sure it is approved by your doctor. Grounding Techniques: Journal or use the “333