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Celebration Time!


We are pleased to announce that in June we were offered an opportunity to be an affiliate with the ๐—š๐—น๐—ผ๐—ฏ๐—ฎ๐—น ๐—›๐—ฒ๐—ฎ๐—ฟ๐˜ ๐—›๐˜‚๐—ฏ.


๐—š๐—›๐—› is an international alliance of heart patient organizations and advocates aiming to create a unified global voice for those living with or affected by cardiovascular disease. Their global community now counts 124 patient organizations around the world! These organizations work together to advocate for you!


In addition, we will be part of the ๐—›๐—ฒ๐—ฎ๐—ฟ๐˜ ๐—ฉ๐—ฎ๐—น๐˜ƒ๐—ฒ ๐——๐—ถ๐˜€๐—ฒ๐—ฎ๐˜€๐—ฒ ๐—ฃ๐—ฎ๐˜๐—ถ๐—ฒ๐—ป๐˜ ๐—–๐—ผ๐˜‚๐—ป๐—ฐ๐—ถ๐—น which was formed in 2019. This council brings together 21 patient organizations from 17 countries to increase awareness of heart valve disease (HVD) across the world. The Patient Council advocates for improving equality and access to treatment across the globe and is a platform for other heart patient organization's to share their views, learn from each other's best practice, unite on common advocacy goals and share resources.


From the GHH: " ๐—š๐—น๐—ผ๐—ฏ๐—ฎ๐—น ๐—›๐—ฒ๐—ฎ๐—ฟ๐˜ ๐—›๐˜‚๐—ฏ is delighted to welcome ๐—”๐—ผ๐—ฟ๐˜๐—ถ๐—ฐ ๐—›๐—ผ๐—ฝ๐—ฒ to our global community! We look forward to supporting and collaborating with such a dedicated organization, and we know we can work together to uplift the voices of those affected by Aortic Disease."


Stay tuned for more information on what this will mean for you. Look forward to a Live Q&A with a representative from both the GHH and Heart Valve Disease Patient Council as they educate the community of the resources you can utilize.

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ใ‚ณใƒกใƒณใƒˆ


Our Sponsors
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Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.  

Doherty, Cella, Keane LLP is a national law firm solely focused on Social Security disability benefits. With over 40 years of expertise, their skilled attorneys guide clients through every stage of the process, from initial applications to appeals. The firm is highly experienced in representing individuals with aortic dissections and related conditions, ensuring specialized, compassionate advocacy. Operating on a contingency basis, they provide peace of mind with no fees unless benefits are awarded. Trust DCK Law for reliable and dedicated representation in this critical area.

Heart Valve Voice US, a patient advocacy, nonprofit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy organizations to identify barriers to improving health for people living with valve disease and advocates for change to enhance health.

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Aortic Hope P.O. Box 17 Abingdon, MD 21009

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