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Welcome our Director of Support Services - Caregivers Teri Liz-Carlisi Ali

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We are very excited to announce our new Director of Support Services (Caregivers) Teri Lize-Carlisi Ali.


Teri will be moderating one of our Support Group Meetings for Caregivers as well as taking on the role of an Admin for the Caregiver Private Forum.



"Hi. I'm Teri.

I'm a caregiver and my survivor was found to have a thoracic aortic aneurysm 5 years ago this Summer. It was found during a lung CT. He has undergone genetic testing and results showed an unspecified connective tissue disorder and genetic 'variance of unknown significance'. At least one adult child carries this variant (the other refuses to be tested or have baseline screening, as do many of his first-degree family members).


I have had a long career in the medical field, having worked in Cardiology / Vascular Research. In my downtime, I love to read medical research journals. I'm also a Project Manager now with a 6 Sigma focus, so I love to dig into the many layers of 'why'. My survivor (husband) is missing the middle layer of his vessel walls (called the tunica media). I've done family interviews, and was astounded to see how many indicators there were along the way for my survivor.


I've been graciously supported by this Caregiver Group for this past 5 years. When you "know", it doesn't mean you don't still have fears, or haven't experienced the very many changes in our lives since his very emergency repair (the PTSD).


This group has been much of what keeps me going. Whether its celebrating the great days when I can put my fears and exhaustion behind me for a moment, to holding me up during my not-so-strong days.

I'm honored to be invited to assist with being an admin on this page. I will do all in my power to continue to uphold each and every one of you (us), as has been done for me.


It's my great pleasure to meet you all on a little different level now." ~Teri


Please welcome Teri.


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Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.  

Doherty, Cella, Keane LLP is a national law firm solely focused on Social Security disability benefits. With over 40 years of expertise, their skilled attorneys guide clients through every stage of the process, from initial applications to appeals. The firm is highly experienced in representing individuals with aortic dissections and related conditions, ensuring specialized, compassionate advocacy. Operating on a contingency basis, they provide peace of mind with no fees unless benefits are awarded. Trust DCK Law for reliable and dedicated representation in this critical area.

Heart Valve Voice US, a patient advocacy, nonprofit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy organizations to identify barriers to improving health for people living with valve disease and advocates for change to enhance health.

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Nectero Medical is a clinical-stage biotech company pioneering novel therapies with a potential to treat aneurysmal disease and improve patients’ lives.

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