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It's Rare Patient Voice Sunday!


Today is Rare Patient Voice Sunday with Aortic Hope!

This week is Invisible Disabilities Week and we are excited to announce our continued collaboration with Rare Patient Voice.

Rare Patient Voice, LLC provides patients and caregivers with rare diseases (or any for that matter) an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders.

Wes has more than 40 years experience in marketing research, and more than 20 years in healthcare marketing research.

While they started by focusing on rare diseases, they now welcome patients and caregivers with all medical conditions.

They have learned that it is important to patients and caregivers to be able to give their opinion. It is also important to get your rewards in a timely manner.

They are proud to have rewarded patients with over $3 million since their founding! At Rare Patient Voice, they pledge to qualified patients and caregivers that they will:

Would you like your voice to be heard? Complete our easy form to get started!!


REMEMBER add any and all medical issues you may experience or provide care to. Your information is protected and you may wish to remain anonymous. Their clients are Market Researchers whose clients are usually Pharma or Health-related clients of some fashion. Data in their database is only used by Rare Patient Voice. A Market Research client will send them a request for patients and/or family caregivers with parameters such as condition, meds, age range, etc.

Take a look at the video and CLICK to join today...you can earn up to $150 for participating and Aortic Hope will receive $10 for every new registration!


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