top of page
Search

Aortic Hope presents Gareth Owens of Aortic Dissection Awareness UK & Ireland

carinandersen

Come join Aortic Hope as they feature guest speaker, Gareth Owens from Aortic Dissection Awareness UK & Ireland and also the Global Think Aorta Campaign Lead.


Tuesday, September 10th at 3pm EST on AHTV YouTube channel:



Gareth will be sharing with the community his passion and work with ADAUKI and TA as well as information about some upcoming initiatives that so many other organizations will be participating in.


Gareth leads the global THINK AORTA campaign, focused on saving lives in acute Aortic Dissection around the world. He is also Chair of Trustees at the national patient charity Aortic Dissection Awareness UK & Ireland, which has around 1.500 members affected by aortic dissection and plays a leading role in raising awareness and advocating for improved care for patients nationally.


Gareth’s father, Harold Owens, had Marfan syndrome and died from an Aortic Dissection aged 49, when Gareth was just 11 years old. Gareth inherited Marfan syndrome from his father. In 2016, Gareth himself suffered an acute Aortic Dissection, caused by his inherited Marfan syndrome. As a result of prompt diagnosis via an immediate CT scan and rapid transfer to a specialist Aortic centre for surgery, his life was saved and his Aorta surgically repaired.


Gareth recognises that he was very fortunate, as a patient, to experience what he calls the ‘happy path’ in the hands of Barts Health NHS Trust in London, after he suffered an acute Aortic Dissection. Since discovering that most patients are not so fortunate, he has made it his mission, through the work of the charity and THINK AORTA, to support affected patients and their families, to raise awareness of Aortic Dissection, to educate healthcare professionals and to drive change in national healthcare systems in order to improve diagnosis, care and outcomes in acute Aortic Dissection.


Gareth believes passionately that every one of the half a million people a year globally who suffer an acute aortic dissection deserves to have access to the high standard of life-saving diagnosis, care and treatment that he was fortunate enough to receive.



コメント


Our Sponsors
RFTH background removed white outline PNG.png

Rock from the Heart's mission is to proactively educate people about aortic and heart valve disease, bridge the gap between impacted families and the support they need, connect those diagnosed with vital resources, and inspire all through the healing power of music.  

Doherty, Cella, Keane LLP is a national law firm solely focused on Social Security disability benefits. With over 40 years of expertise, their skilled attorneys guide clients through every stage of the process, from initial applications to appeals. The firm is highly experienced in representing individuals with aortic dissections and related conditions, ensuring specialized, compassionate advocacy. Operating on a contingency basis, they provide peace of mind with no fees unless benefits are awarded. Trust DCK Law for reliable and dedicated representation in this critical area.

Heart Valve Voice US, a patient advocacy, nonprofit organization, provides patients with a united voice to improve health for people living with heart valve disease by advocating for early detection, meaningful support, and timely access to appropriate treatment for all people affected by heart valve disease. Heart Valve Voice works with people living with heart valve disease, clinicians and other experts, and other patient service and advocacy organizations to identify barriers to improving health for people living with valve disease and advocates for change to enhance health.

Nectero Medical Logo v2 (1).jpg

Nectero Medical is a clinical-stage biotech company pioneering novel therapies with a potential to treat aneurysmal disease and improve patients’ lives.

Hope Ambassador

 

Would you like to spread hope, create awareness, and provide support with us?

Survivor Series

Share your amazing story of survival, or as a caregiver, with the community. 

Patient Awareness Posters

If you would like to have these in your doctor’s office, please click the Sign-Up button.

  • Facebook
  • YouTube
  • Instagram
  • X
  • LinkedIn

 

Aortic Hope P.O. Box 17 Abingdon, MD 21009

bottom of page