Marfan Survivor Story of Grace Barnhart
Today is Saturday Survivor Series!
🎤 We are back with a new video for our Survivor Series! On certain Saturdays during the month, we will share stories from survivors or caregivers within the Aortic community.
🎙 Today we bring you a video of survival from Grace Barnhart. Grace is the daughter of Aortic Hope co-founder Jaime Barnhart and Marfan Survivor (Aortic Hope Board of Director) Bill Barnhart. Watch as she shares with you a short video explaining her journey with Marfan Syndrome as well as her quest to help create awareness and provide support to other children with Marfan. She has been a member of the Marfan Teen Council for the last two years and has become increasingly more active with the Marfan Foundation.
❤️ We would love for you to learn more about her initiative, Marfan Friends, by taking a minute to check out the website:
❤️ If you would be interested in sharing your story in video format, please complete the form:
and Gregg Greenberg will respond.
❤️ You never know how your story, whether as a survivor or caregiver, will affect and inspire others.
The Aortic Hope: Survivor Video Series form allows Aortic Hope to collect basic information for Survivor Series video participants. This information will not be shared with anyone except the Aortic Hope administrative members. Videos submitted to Aortic Hope are used solely for the purpose of sharing with others; no monetary payment will be made.