Research Study Opportunity!!!
Do you have an aortic aneurysm or have you had an aortic dissection? Do you want to be active but are uncertain about what types of exercise are safe? Are you confused by exercise restrictions?
If you answered yes to these questions, we invite you to participate in a new study at the University of Texas at Houston (UTHealth) led by Dr. Siddharth Prakash, a cardiologist at McGovern Medical School.
· Dr. Prakash and his study team will measure your blood pressure during routine activities and while you perform different types of exercise.
· We will also measure the size and stiffness of your aorta using a new ultrasound test that may help us to provide more individual care to patients with aneurysms and dissections.
· These tests are free, do not involve needles or drugs, and will take only 2-3 hours of your time, but you will have to travel to our clinic at the Texas Medical Center in Houston.
· At the end, we will meet with you to explain how your results can help you to stay safe and increase your overall cardiovascular health while you exercise.
***This study is NOT for people with a confirmed fbn1 mutation per the study guidelines.
For more information, please contact our study team at 713-500-6704 and ask about the “UTHealth Blood Pressure Study.”
Aortic Hope is pleased to announce our new relationship with Lauren’s Hope Medical ID Jewlery!
Lauren’s Hope is very excited to be able to offer everyone in the Aortic community a 10% discount simply by using AORTICHOPE as the promo code!!!
Please use this link to make your purchase as we are an affiliate and a portion of the sale will support Aortic Hope's initiatives:
WHO IS LAUREN’S HOPE?
”In 2001, Lauren’s Hope introduced the very first interchangeable medical ID bracelet, and overnight, people who had grudgingly worn, or even refused to wear, the standard, plain metal medical ID bracelets of the past suddenly had attractive, durable, stylish options they could enjoy wearing and change to suit their mood, outfit, or activity.
Today, more than 400,000 people wear Lauren’s Hope medical IDs every day, and we’re proud to say that number just keeps growing.
Our ever-expanding line of medical ID bracelets, necklaces, anklets, charms, bag tags, and more is always on-trend, made to the highest quality, and guaranteed to meet your needs and expectations.”
Who Is Lauren?
”We’re often asked who Lauren is or where the name “Lauren’s Hope” came from. The original interchangeable medical ID bracelet was made for Lauren, a 13 year old with diabetes who refused to wear medical ID jewelry because, as she said, ‘It’s ugly and draws attention to my illness.’ So we set out to design a medical alert bracelet that Lauren, and the millions of people like her who avoided medical IDs when they really needed them, would actually enjoy wearing.”
MEDICAL ID BRACELETS
Medical ID bracelets serve many purposes but their main objective is to assist healthcare professionals and first responders to get an in-depth view of the patient’s medical condition so that proper treatment can be administered without delay. The bracelet is of immense help when the patient is not able to communicate clearly.
BIG ANNOUNCEMENT: IT'S OFFICIAL!
Aortic Hope is an official 501(c)(3) charity. Any donations given to Aortic Hope may be tax deductible retroactive to June 2017! Click the picture below and enjoy the video!
📣Aortic Hope is excited to announce something that has little to do with us and EVERYTHING to do with YOU and the COMMUNITY! Help Create Awareness within the community and get everyone thinking about their AORTA! 🎗️With a $10 donation, you can get yours today! They will be mailed starting the third week of July.🎗️
(don't forget to include your mailing address)
Aortic Hope is excited to announce that we were nominated for: Best In Show: Facebook at WEGO Health!!!
Facebook is a community all its own. Over the past few years, it has transformed from a place for a personal profile to a real hub for discourse, conversation, and community. Who has the best Facebook Group or Page of anyone you know? Who utilizes Facebook Lives to amplify their patient advocacy? The winner of this category has balanced the ever-changing interface of Facebook and has turned it into an opportunity to reach more people. This Patient Leader fosters an environment where people want to "Like" and interact. They may have other social media sites, but he or she really utilizes all the tools Facebook has to offer and shows how it can be used for good!
WEGO Health is a mission-driven company connecting health care with the experience, skills and insights of Patient Leaders.
WEGO is the world’s largest network of over 100k Patient Leaders, working across virtually all health conditions and topics. Their network collaborates with pharmaceutical and life sciences companies, agencies, consultancies, startups and all types of organizations across healthcare.
WEGO Health offers enterprise and on-demand solutions that allow organizations to leverage the patient experience and expertise in the design, development and promotion of their products and services.
“Very encouraging…can relate to Aortic issues”
“Great info and wonderful support from survivors.”
“Aortic Hope provides daily motivation and inspiration for the survivors. AH is also a wealth of knowledge and resources for warriors and their friends and families. Thank you for doing what you do! “
“For anyone directly or indirectly affected by AD. This is the place.”
“Extremely informative and supportive. Always there to listen even when nobody else is.“
“Aortic Hope is a perfect name for this group. Hope is something we all need when we’re going through this! So appreciate the info and the group support from people who have survived and understand like no one else can.”
~ Una (Survivor)
“Informative and sense of community. Grateful for all of the connections. Loved my Aortaversary gift during “our” month!”
“Gain very valuable information from them and others as to my condition. Great support and encouragement. “
“Recommend to those who have had, or expecting cardiac, surgery resulting from an aortic disease. This community helps raise awareness and spread knowledge about new medical studies, findings as well as medicinal advice (given the recent recalls on beta blockers and high BP meds). “
“ I’ve learned so much since joining this page - which has lowered my anxiety and given me comfort. Love the live Q & A’s”
“AH has given me an outlet to speak to other survivors. I also love the live chats. The admins are so dedicated and caring. I will be a part of this group until the day I die. I love these people. they are my family by choice not by blood. “
“Very informative. Great support. Uplifting messages.”
“People learn the different forms of the disease. The name is perfect!”
“Great site for us heart warriors. Thanks for creating it and helping others of how its important to be aware”
"Aortic Hope....we need more groups like this in the world."
Aortic Hope is..."Awesome! Filled with great information! Great people. People from the group reached out to me and that's important."
"This group educates and increases awareness of aortic disease and allows others to appreciate the dramatic impact it can have on the lives of those afflicted and their loved ones. Through our work together we can turn many of these would-be emergency operations into safer elective procedures. We can educate the family of patients with aortic disease to get screened with echocardiography and CT or MRI imaging. And we can support those who carry these diagnoses along the way."
~Ben Youdelman, MD, Director of the Maimonides Aortic Center, Brooklyn, New York
"Today was my 4 year aortaversary!!! So very thankful for each day I am given! Blessed for this community of people who have been through the same life altering events!!! And grateful for a 2nd chance!!!"
"Aortic Hope is all it's name says and more! Giving hope through inspiration, education & genuine concern. They have created a "World-Wide" community of comradery among Aortic Survivors, Caregivers & Families! There's always room for you, too!"