Live Q&A with Dr. Dianna Milewicz
Mar
21
6:00 PM18:00

Live Q&A with Dr. Dianna Milewicz

Join Aortic Hope for a very special Facebook live event with Dr. Dianna Milewicz beginning at 6:00 pm EST. Come learn about the genetic connections existing with Aortic Disease. Bring all questions pertaining to Aortic Disease (Aneurysms and Dissections) and genetics.

Dianna M. Milewicz, MD, PhD, is the President George H.W. Bush Chair of Cardiovascular Medicine, Director of the Division of Medical Genetics and Vice-Chair of the Department of Internal Medicine at McGovern Medical School at UTHealth, University of Texas Health Science Center at Houston.

She is currently Director of an NIH-funded Specialized Center of Clinically Oriented Research in Thoracic Aortic Aneurysms and Dissections and Chairman of the Thoracic Aortic Disease Coalition, which is a collaboration among patient-advocate organizations, the American Heart Association AHA), and the American College of Cardiologists to increase public awareness of the risk factors and symptoms of life-threatening acute aortic dissections. She has been inducted into the American Society of Clinical Investigation and the Association of American Physicians.

She completed her postgraduate training in internal medicine, specialized further in medical genetics, and forged a career in translational studies focused on genetic predisposition to vascular diseases. She has received numerous honors and awards for her research, including the Antoine Marfan Award, the Doris duke Distinguished Clinical Scientist Award, and the University of Texas Presidential Scholars Award for Excellence in Research.

Dr. Milewicz has been the Director of the MD/PhD Program offered jointly between the McGovern Medical School at UTHealth and MD Anderson Cancer Center institutions for over 15 years and is Past Chair for the GREAT MC/PhD Section Committee.

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Ask A Dr with Dr. Prakash
Mar
26
6:00 PM18:00

Ask A Dr with Dr. Prakash

Join Aortic Hope on our Facebook page March 26th beginning at 6:00 pm EST for Ask A Dr. with Dr. Siddarth Prakash.

Go to the Ask A Doctor post on our Facebook page and post any questions you might have about Aortic Disease in the comments section and he will reply with an answer! THIS IS NOT A LIVE VIDEO EVENT.

Dr. Prakash obtained his Ph.D. in Molecular and Human Genetics and subspecialty training in Cardiovascular Disease at Baylor College of Medicine. His research focuses on genetic causes of bicuspid aortic valves and related congenital abnormalities involving the left ventricular outflow tract and aorta. This work is supported in part by a KL2 award from the Center of Clinical and Translational Sciences. His clinical specialty is cardiovascular medicine and aortic imaging. He co-directs the Multidisciplinary Aortic and Vascular Disease Clinic in the UT Professional Building with Dr. Milewicz.

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Aortic Hope's Closed Support Group
Mar
28
7:00 PM19:00

Aortic Hope's Closed Support Group

❤️ Every Sunday at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online recurring every Sunday at the same time, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/189780934

❤️ We will be holding support groups every Sunday at the same time. Some days there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged ...

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Live Q&A Event with Dr. Stacey Fisher
Feb
12
6:00 PM18:00

Live Q&A Event with Dr. Stacey Fisher

Join Aortic Hope on their Facebook page, February 12th beginning at 6:00 pm EST for a Live Q&A event with Stacy Fisher, MD.

Stacy Fisher, MD is an Associate Professor of Medicine in the Division of Cardiology at the University of Maryland School of Medicine. Her clinical specialties include echocardiography, adult congenital heart disease, heart disease during pregnancy, and pulmonary hypertension. Dr. Fisher has been practicing in the Baltimore community for almost 10 years and was ranked as a Baltimore Magazine Top Doctor in 2008, 2009, 2010 and 2016.

Prior to joining the University of Maryland, Dr. Fisher was a general cardiologist and adult congenital heart disease specialist at Mid-Atlantic Cardiovascular Associates. Concurrently, she served as the director of cardiovascular education and medical director of Women's Cardiovascular Health Program at Sinai Hospital. Dr. Fisher is an alumnus of the University of Maryland School of Medicine. She completed her residency training at Duke University Medical Center and her cardiology fellowship at University of Rochester Medical Center.

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Rock from the Heart Concert
Feb
9
8:00 PM20:00

Rock from the Heart Concert

The John Ritter Foundation for Aortic Health presents Rock from the Heartfeaturing Night Ranger
With special guest The Band That Fell To Earth
Brought to you by 104.1 Jack FM 

Ticket Information: https://hennepintheatretrust.org/events/rock-from-the-heart-for-aortic-health-tickets-pantages-theatre-minneapolis-mn-2019/

The inaugural Rock from the Heart concert benefiting the John Ritter Foundation for Aortic Health featuring Night Ranger will raise money and awareness for aortic health while spending the night rocking with one of America's most legendary bands. 

With more than 17 million albums sold worldwide, over 3,000 live shows performed, and more than 1 billion in radio audience, Night Ranger has both epitomized and transcended the arena rock sound and style of that era and beyond. With songs that have significantly impacted popular culture and continue to expand their ever-growing fan-base, Night Ranger is proof that powerful songs, plus accomplished musicians is the perfect formula for continued success.

Night Ranger has earned widespread acclaim, multi-platinum and gold album status while leaving their indelible mark on the music charts with a string of best-selling albums and instantly recognizable hit singles such as “Sister Christian,” “Don’t Tell Me You Love Me,” “When You Close Your Eyes” and more. The band was also one of the first big "video" bands, with more than 10 number 1 videos on MTV. Night Ranger is Jack Blades (bass, vocals), Kelly Keagy (drums, vocals), Brad Gillis (lead & rhythm guitars), Eric Levy (keyboards) and Keri Kelli (lead & rhythm guitars). 

ABOUT Rock from the Heart
In March 2015, Rock from the Heart founder Amy Johnson's husband, local drummer Pete Johnson, went to the doctor for a routine physical. The doctor heard a heart murmur and scheduled Pete for an echocardiogram.

"I will never forget when Pete got the call and was told he had a 5cm ascending aortic aneurysm and moderate aortic stenosis that would require surgery," Amy Johnson said. "I’d never heard of these conditions. When I looked it up on the internet and learned what it was, I felt sick."

The Johnsons met with Pete’s primary care doctor, and he told them that actor John Ritter had died from an aortic aneurysm, and Pete was lucky it was caught early. The doctor reassured the Johnsons it was fixable, and the “watch and wait” years began. Pete was monitored every 6 months to check progression of the aneurysm and stenosis. The doctor also explained in detail what the signs and symptoms of aortic dissection were and instructed them to call immediately if Pete experienced any symptoms. 

At Pete’s May 2017 appointment, the stenosis had progressed to severe, and surgery was scheduled for July 12. After the appointment was scheduled, the Johnsons learned one of their favorite drummers, Kelly Keagy of Night Ranger, also had heart surgery, and was taking six weeks off to recover. A few weeks later, the Johnsons saw that the band was playing in Fargo, so they drove up to see them. 

Jack Blades announced from stage that Kelly had open heart surgery and was back rocking after 8 weeks," Amy Johnson said. "I cried. Those words, and seeing Kelly up there on stage 8 weeks post surgery gave me hope. We now had the 'Kelly Keagy Barometer' for recovery."

During Pete’s recovery months, Night Ranger announced a December show in Minnesota, so Amy bought tickets and surprised Pete by adding the meet and greet package. 

"It was important to me to tell Kelly how much it helped us mentally and emotionally to see him up there after his surgery," Amy said. "It was an unforgettable experience for us to shake his hand and thank him in person for getting us though a tough time."

Before Pete went in for surgery at the Minneapolis Heart Institute, the Johnsons decided once Pete recovered, they would find a way to help others by raising awareness of this silent killer. Because of the work the John Ritter Foundation has done, doctors are looking for the signs and sending patients in for testing. Now, it is the Johnsons turn to give back. 

"We love rock music, and music brings people together, so we decided a great way to raise money and awareness would be to hold a benefit concert," Amy Johnson said. "Because of the emotional connection we felt with Night Ranger, we knew they would be the ideal headliner, and Rock from the Heart was born."

The John Ritter Foundation was created in October 2003, just weeks after John’s sudden death due to an acute aortic dissection. Formed by his widow, Amy Yasbeck, and their family for the purpose of receiving donations in honor of John’s life, the foundation is focused on thoracic aortic disease education, support, and research.

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Rock from the Heart Recognition Dinner
Feb
8
6:00 PM18:00

Rock from the Heart Recognition Dinner

Dinner will be held after the symposium.

Stone Arch Ballroom at Loews Hotel

601 1st Avenue North
Minneapolis, MN 55403
United States 

Tickets

Survivors  $20

General  $35

Ticket price includes 1 free drink 

MENU

STARTER

Organic field greens: Apples, granola, dried fruit seeds, brie cheese, poppy seed dressing

ENTREE (choose one)

(1) Seared local chicken with truffle whipped potatoes, roasted forest mushrooms, and thyme jus 

(2) Butternut squash ravioli: roasted butternut squash, sage, brown butter

DESSERT 

Salted caramel chocolate tart 

To Register for Dinner: https://www.brownpapertickets.com/event/3921330

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Aortic Health Community Symposium
Feb
8
1:30 PM13:30

Aortic Health Community Symposium

For medical experts, survivors and families:

Loews Hotel – Minneapolis, MN 

Friday February 8th, 2019

Agenda (subject to updates) 

1:30-2:00pm Registration 

Emcee: Patty Peterson - Aortic Dissection Survivor

2:00-2:15pm Welcome and Introductions 

Amy Yasbeck - The John Ritter Foundation 

2:15-2:45pm Aortic Disease Genetics     

Dianna Milewicz  MD PhD John Ritter Research Program

2:45-4:00pm  

Aortic Aneurysm 

Kevin Harris MDMinneapolis Heart Institute

Aortic Disease
Alex Campbell MD Minneapolis Heart Institute

Aortic Valve Surgery

Judah Askew MD Minneapolis Heart Institute

4:00-4:30pm Dental Health and the Heart 

Kelli Schaust - Crow River Dental

4:30-5:30pm Survivor Stories 

Jeff Harter: aortic aneurysm and aortic

 valve replacement survivor 

5:30-6:00pm Question and Answer Panel 

Marilyn Serafini (Moderator)  Heart Valve Voice.

To Register: https://www.brownpapertickets.com/event/3921330

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Cabin Fever 40 at Boyd's Speedway
Feb
2
9:00 AM09:00

Cabin Fever 40 at Boyd's Speedway

🎉 We are very excited to announce that Jeff Helms, caregiver of aortic dissection survivor Andrea Garrett-Helms, will be racing in the Cabin Fever 40 at Boyd's Speedway!

🏎 His car will be promoting Aortic Disease Awareness by racing with the Aortic Disease Awareness Ribbon on the side of his car!!!! Two additional racers will also be helping to spread the awareness of Aortic Disease by proudly displaying the ribbon on their cars as well!

🌎 This is a huge race with people from all over the country in attendance! What a great opportunity to bring Aortic Disease Awareness to the forefront of everyone's mind!

🏎 FYI...in case you didn't know, the awareness ribbon incorporates Aortic Hope's 3 hearts at the top. Each heart represents the Patient, Survivor and Caregiver.

🏆 We are not sure if this event is being televised or live streamed but as soon as we have additional information we will let you know. However, if anyone is in the Ringgold, GA area on Saturday, please consider attending the event and share pictures!

❤ Stay tuned on Saturday as we are featuring Andrea in our Saturday Survivor Series! She will share with everyone the incredible story of her Aortic Dissection and the birth of her child. It is a very emotional and powerful story, one you will find quite inspirational!

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Join Carin Andersen of Aortic  Hope live on Doctor Radio with Dr. Todd Berland
Jan
25
6:30 AM06:30

Join Carin Andersen of Aortic Hope live on Doctor Radio with Dr. Todd Berland

Carin Andersen will be speaking with Dr. Todd Berland about her experience with Aortic Disease live on Doctor Radio, channel 110 on SiriusXM Radio.

Dr. Berland is a world renowned vascular surgeon based in New York City. He is listed in Castle Connolly “America’s Top Doctors” for 2018 and has been a member of Alpha Omega Alpha, America’s top Medical Society, since 2003. Dr Berland is published extensively and is the principal investigator for several ongoing research trials. Dr. Berland is also the host of the “Vascular Surgery Show” on Sirius/XM’s Doctor Radio (Channel 110), which airs live bi-weekly on Fridays from 6-8am.

Dr. Berland obtained his degree from the Medical College of Georgia in 2003 and completed his General Surgery residency at Mayo Clinic in 2008, where, as Chief Resident, he was awarded a patent for a unique minimally invasive technique that can be used in different procedures over a wide range of surgical subspecialties.

Dr. Berland decided to pursue a fellowship in Vascular Surgery when it became apparent that the field’s technology was rapidly advancing towards less invasive procedures, allowing patients to recover and return to their daily activities more quickly. Upon completing his fellowship at NYU’s Lagone Medical Center in 2010, Dr. Berland joined the faculty there and is currently the Director of Outpatient Vascular Interventions.

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Live Caregiver Story with Jaime
Jan
19
12:00 PM12:00

Live Caregiver Story with Jaime

Join us on Facebook as Aortic Hope kicks off the next five days of Aortic Caregiver Appreciation!

Instead of our regular Saturday Survivor Series, we will be hosting a special LIVE event with our very own, Jaime Devey Barnhart on Saturday, January 19th at 12:00pm EST.

Jaime is one of the founders and Board Members at Aortic Hope. Professionally, she is an executive director and event manager for a trade association in the DC Metro area.

Jaime has been married to Bill Barnhart for 15 years and they have three children. Bill and their oldest daughter have Marfan Syndrome.

Since 2003, Jaime has been a caregiver for Bill when he suffered an aortic dissection, survived two rounds of life-threatening infections and multiple aortic repairs and open heart surgeries.

Jaime will be sharing with you her story as a caregiver and is open to answering any questions you may have ❤️

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Live Q&A with Allison Bathula D, BCCCP & Pharmaceuticals
Dec
10
6:00 PM18:00

Live Q&A with Allison Bathula D, BCCCP & Pharmaceuticals

Join Aortic Hope for a Live Q&A on Facebook focusing on everything related to medication and Aortic Disease

Allison Bathula went to pharmacy school at the University of Arkansas for Medical Sciences. Upon graduation, she moved to Baltimore to continue her training in a pharmacy residency in critical care. She now works in the cardiac surgery intensive care unit at the University of Maryland Medical Center. 

Jacob Wellen is a 4th-year pharmacy student who upon graduation from pharmacy school would like to pursue a residency focusing on genetics. 

We will be discussing the most common medications given to those of us with Aortic Disease, the drug classifications, potential side effects, timing and effectiveness, interactions and so much more. Please join us and come with your questions!

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Live Q&A with Dr. Dianna Milewicz
Dec
6
7:00 PM19:00

Live Q&A with Dr. Dianna Milewicz

Join Aortic Hope for a very special Facebook live event with Dr. Dianna Milewicz beginning at 7:00 pm EST. Come learn about the genetic connections existing with Aortic Disease. Bring all questions pertaining to Aortic Disease (Aneurysms and Dissections) and genetics.

Dianna M. Milewicz, MD, PhD, is the President George H.W. Bush Chair of Cardiovascular Medicine, Director of the Division of Medical Genetics and Vice-Chair of the Department of Internal Medicine at McGovern Medical School at UTHealth, University of Texas Health Science Center at Houston.

She is currently Director of an NIH-funded Specialized Center of Clinically Oriented Research in Thoracic Aortic Aneurysms and Dissections and Chairman of the Thoracic Aortic Disease Coalition, which is a collaboration among patient-advocate organizations, the American Heart Association AHA), and the American College of Cardiologists to increase public awareness of the risk factors and symptoms of life-threatening acute aortic dissections. She has been inducted into the American Society of Clinical Investigation and the Association of American Physicians.

She completed her postgraduate training in internal medicine, specialized further in medical genetics, and forged a career in translational studies focused on genetic predisposition to vascular diseases. She has received numerous honors and awards for her research, including the Antoine Marfan Award, the Doris duke Distinguished Clinical Scientist Award, and the University of Texas Presidential Scholars Award for Excellence in Research.

Dr. Milewicz has been the Director of the MD/PhD Program offered jointly between the McGovern Medical School at UTHealth and MD Anderson Cancer Center institutions for over 15 years and is Past Chair for the GREAT MC/PhD Section Committee.

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Aortic Hope's Closed Support Group
Nov
15
7:00 PM19:00

Aortic Hope's Closed Support Group

❤️ Thursday, Nov. 15th the support group will be open to everyone. It will take place at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online, in a private video conference room.

❤️The facilitator will be Carl Grody, LISW-S, who specializes in child, adolescent and family therapy. He has been in private practice since 2010. Carl earned his Master's degree in Social Worl from The Ohio State University in 2007. He uses an integrated strengths-oriented approach that focuses on solutions and positive narratives. Carl also is a published author. He has published 13 books as well as hundreds of articles for national magazines. http://m.grodyfamilycounseling.com/home.html

❤️ Aortic Hope's Closed Support Group

Join from PC, Mac, Linux, iOS or Android:

https://zoom.us/j/273305650

❤️ We will be holding support groups on specified Sundays at the same time. Some days there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic Disease.

Ground rules:

1. Please be prompt (7pm EST)

2. Learn how to use your device (you want to try to minimize background noise such as music and people)

3. Privacy ( try to pick a location that is private, never share information, this environment is one where you should feel safe and comfortable)

4. No recording (do not record audio or video it the group meetings)

5. We will never post or discuss content that is shared publicly. Your privacy is important to us.

6. This group is about YOU. We welcome all feedback, comments, and suggestions regarding the process, content discussed and guest speakers.

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The DC Comedy Loft presents Hope Ambassador, Chris Cope
Nov
2
to Nov 4

The DC Comedy Loft presents Hope Ambassador, Chris Cope

Come out, meet survivors, and enjoy the comedy of our new Hope Ambassador, Chris Cope!

Chris Cope
with Eddie Morrison and Erik Escobar

Comedian Chris Cope is a Florida transplant living in Los Angeles, La’s been great to Chris thus far, In his short time in town, Chris has appeared on The Jimmy Kimmel Show, Laughs on Fox , Tosh.0 and “Grey’s Anatomy”. His Southern Charm isn’t limited to stage and screen, He has just released his first first full length comedy album, “White Trash Super Computer”, debuted in the Top 10 on Amazon.com and Top 25 on Itunes. Check Chris out on Pandora and Spotify or Headlining Comedy Clubs All Over The United States.

Chris also won the prestigious 2015 Big Sky Comedy Festival and recently appeared as a Judge on “Cooking On High” On Warner Bros Digital and TOSH.0.

2 item minimum

Doors close 30 minutes after showtime.

***Mention Aortic Hope and you will be given a discount on your ticket!***

Online Box Office closes 1.5 hours prior to showtime. Tickets are available at the door UNLESS tickets have sold out.

For ticket information: https://www-dccomedyloft-com.seatengine.com/events/24200

21+ for late shows. 18+ with guardian for early shows.

ALL SALES ARE FINAL. NO REFUNDS

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Live Q&A with Dr. Stacy Fisher
Oct
30
5:30 PM17:30

Live Q&A with Dr. Stacy Fisher

Join Aortic Hope on their Facebook page beginning at 8:30 pm EST for a Live Q&A event with Stacy Fisher, MD.

Stacy Fisher, MD is an Associate Professor of Medicine in the Division of Cardiology at the University of Maryland School of Medicine. Her clinical specialties include echocardiography, adult congenital heart disease, heart disease during pregnancy, and pulmonary hypertension. Dr. Fisher has been practicing in the Baltimore community for almost 10 years, and was ranked as a Baltimore Magazine Top Doctor in 2008, 2009, 2010 and 2016.

Prior to joining the University of Maryland, Dr. Fisher was a general cardiologist and adult congenital heart disease specialist at Mid-Atlantic Cardiovascular Associates. Concurrently, she served as the director of cardiovascular education and medical director of Women's Cardiovascular Health Program at Sinai Hospital. Dr. Fisher is an alumni of the University of Maryland School of Medicine. She completed her residency training at Duke University Medical Center and her cardiology fellowship at University of Rochester Medical Center.

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Sunday Support Group-Grief only
Oct
28
7:00 PM19:00

Sunday Support Group-Grief only

❤️ Every Sunday at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online recurring every Sunday at the same time, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/189780934

❤️ We will be holding support groups every Sunday at the same time. Some days there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged ...

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Ask A Dr. with Dr. Siddarth Prakash
Oct
18
7:00 PM19:00

Ask A Dr. with Dr. Siddarth Prakash

Log onto Aortic Hope's page on Facebook to ask Dr. Prakash questions pertaining to Aortic Disease.  He will be available to answer questions in text form in the comment sections of the post entitled Ask A Dr.. 

Dr. Prakash an Assistant Professor at McGovern Medical School at The University of Texas Health Science Center at Houston (UTHealth).

Board certified in Cardiovascular Disease and Internal Medicine, Dr. Prakash’s clinical interests center on the bicuspid aortic valve, thoracic aortic aneurysm, and adult congenital heart disease in patients 17 and older. His research concentrates on the genetic causes of bicuspid aortic valves and related congenital abnormalities involving the left ventricular outflow tract and aorta.

Dr. Prakash’s practice philosophy includes continuous assessment, participation in research, and guideline-based therapies. Patients rely on him for long-term care and clear answers regarding their genetic conditions and prognosis due to his strong emphasis in genetic counseling, screening, and surveillance for patients and families with congenital heart disease.

Dr. Prakash is a Fellow of the American Heart Association and the American College of Cardiology.

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Virtual Support Group-Caregivers Only
Oct
14
8:30 PM20:30

Virtual Support Group-Caregivers Only

❤️ Every Sunday at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online recurring every Sunday at the same time, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/189780934

❤️ We will be holding support groups every Sunday at the same time. Some days there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged ...

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Live Q&A with Karin Bertozzi Certified Cardiac Yoga Instructor
Sep
23
4:00 PM16:00

Live Q&A with Karin Bertozzi Certified Cardiac Yoga Instructor

Please join us for a very special and unique Live Q&A event with a member of our community and Hope Ambassador, Karin Bertozzi. Karin was most recently featured in our Survivor Series. Almost 4 years ago Karin Bertozzi fainted in a market in Bethesda, Maryland. Four days later she woke up in the ICU and learned she had suffered an ascending aortic aneurysm and dissection. Her surprise event revealed a connective tissue disorder that has been in her family for generations. She is very active as a volunteer with Mended Hearts - a support group offering hope to heart patients and their families. Her message is one of giving back and knowing your family history. Karin has recently become a 500ERTY and Cardiac Yoga Certified Instructor. She will be showing us how we all can do simple and easy Chair Yoga as a way of decreasing stress and improving our emotional and mental well-being. You will also have time to ask any questions about her, her experience and Chair Yoga.

This will not involve any isometric movements. However, please make sure you are cleared by your doctor before taking part in any stretching or exercise.

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Live Q&A with Amy Wagner, LCSW-C, Clinical Director
Sep
19
8:30 PM20:30

Live Q&A with Amy Wagner, LCSW-C, Clinical Director

Aortic Hope has a featured guest: Amy Wagner, LCSW-C, Clinical Director. She has been trained in many areas of trauma work including the well-known technique of Eye Movement Desensitization and Reprocessing (EMDR) and Trauma-Focused Cognitive Behavioral Therapy (TF-CBT).

Since this is a live event, we will be discussing the emotional effects of a physical emergency such as dissection and Aortic Disease in general. you will have an opportunity to ask questions.


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A Night for Living - presented by Aortic Health of Alabama
Sep
14
7:00 PM19:00

A Night for Living - presented by Aortic Health of Alabama

A Night for Living presented by Aortic Health of Alabama will be a night filled with lots of excitement and fun.

We will have dinner and a show as well as special guests Carin Sue Andersen from Aortic Hope, former Alabama football player Trent Richardson, young singer Hailee Faith Squires, famous bodybuilder and trainer Jennifer Underwood and more!

This is a night you won’t want to miss. We will also have a silent auction and raffle as well as a chance to meet and greet with our special guests. Food will be available and non-alcoholic beverages.

Tickets are available on eventbright. Tickets are $25 in advance or $30 at the door the night of the event. The funds we raise will be used to benefit the Aortic community through the purchase of gift baskets and blood pressure cuffs for Aortic Dissection patients. In addition, a portion of the proceeds from the event will be given as a donation to Aortic Hope, Inc.

Tickets:  https://www.eventbrite.com/e/aortic-health-of-alabama-tickets-48218723500?aff=es2

 

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Ask A Dr. with Dr. Stacy Fisher
Sep
6
4:30 PM16:30

Ask A Dr. with Dr. Stacy Fisher

Join Aortic Hope on their Facebook page beginning at 4:30 pm EST for Ask A Dr. with Dr. Stacy Fisher, MD.

Feel free to ask questions under the Comment section of the Ask A Dr. post on September 6th and Dr. Fisher will respond to questions in live time.

Stacy Fisher, MD is an Associate Professor of Medicine in the Division of Cardiology at the University of Maryland School of Medicine. Her clinical specialties include echocardiography, adult congenital heart disease, heart disease during pregnancy, and pulmonary hypertension. Dr. Fisher has been practicing in the Baltimore community for almost 10 years, and was ranked as a Baltimore Magazine Top Doctor in 2008, 2009, 2010 and 2016.

Prior to joining the University of Maryland, Dr. Fisher was a general cardiologist and adult congenital heart disease specialist at Mid-Atlantic Cardiovascular Associates. Concurrently, she served as the director of cardiovascular education and medical director of Women's Cardiovascular Health Program at Sinai Hospital. Dr. Fisher is an alumni of the University of Maryland School of Medicine. She completed her residency training at Duke University Medical Center and her cardiology fellowship at University of Rochester Medical Center.

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Facebook Live Q&A: Dr. Prakash discussing Aneurysms and more
Sep
4
7:00 PM19:00

Facebook Live Q&A: Dr. Prakash discussing Aneurysms and more

Join Aortic Hope for a Live Q&A Facebook event featuring Dr. Siddharth Prakash, whom we met at the John Ritter Community Symposium. 

Dr. Prakash an Assistant Professor at McGovern Medical School at The University of Texas Health Science Center at Houston (UTHealth).

Board certified in Cardiovascular Disease and Internal Medicine, Dr. Prakash’s clinical interests center on the bicuspid aortic valve, thoracic aortic aneurysm, and adult congenital heart disease in patients 17 and older. His research concentrates on the genetic causes of bicuspid aortic valves and related congenital abnormalities involving the left ventricular outflow tract and aorta.

Dr. Prakash’s practice philosophy includes continuous assessment, participation in research, and guideline-based therapies. Patients rely on him for long-term care and clear answers regarding their genetic conditions and prognosis due to his strong emphasis in genetic counseling, screening, and surveillance for patients and families with congenital heart disease.

Dr. Prakash is a Fellow of the American Heart Association and the American College of Cardiology.

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Facebook Live Q&A:  Navigating the Disability Process
Jul
23
7:00 PM19:00

Facebook Live Q&A: Navigating the Disability Process

Applying for disablity benefits is a daunting task. Paperwork, denials, medical reports, and more can be overwhelming and confusing. 

Join Aortic Hope and Carin Andersen in a discussion with two Representatives from the law firm Doherty, Cella, Keane & Associates, LLP. Learn about the process, what information you will need, and how you can ensure your case is reviewed appropriately. What should you do if your application is denied? When does it make sense to hire an attorney? Bring your questions!!!!

Barbara A. Mountain
National Director of Business Development - Doherty, Cella, Keane LLP

Barbara Mountain is the National Director of Business Development at Doherty, Cella, Keane LLP, a law firm dedicated to Social Security disability. Barbara has over 20 years of disability claims and Social Security Disability experience. She is the primary contact with all national client companies, and she is responsible for customer satisfaction, retention, service, quality control and training. Barbara began her career with the Social Security Administration where she worked for seven years as a Social Insurance Specialist with expertise in Social Security law and Supplemental Security Income law. 

Christopher P. Doherty
Partner - Doherty, Cella, Keane LLP

Chris Doherty has been working in the Social Security arena since 1981, initially as a Claims Representative with the Social Security Administration. While working for Social Security he specialized in dealing with disability claims. He began practicing law in this exclusive area in 1987 and along with his partners founded Doherty, Cella, Keane LLP in 1995. Doherty, Cella, Keane LLP is a Limited Liability Law Firm Partnership that represents claimants nationally for Social Security disability benefits. Chris is a frequent lecturer and renowned subject matter expert on Social Security Administrative Law and Insurance. He is a sustaining member of the National Organization of Social Security Claims Representatives (NOSSCR), the Disability Management Employer Coalition, The International Claim Association and the New England Claims Association. Chris practices out of Massachusetts and is a graduate of Tufts University and Suffolk University Law School.

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Facebook Live Q&A: Dr. Prakash
Jul
5
6:00 PM18:00

Facebook Live Q&A: Dr. Prakash

Monday, July 2, 2018
6 PM - 7 PM EDT

Join Aortic Hope for a Live Q&A Facebook event featuring Dr. Siddharth Prakash, whom we meet at the John Ritter Community Symposium. 

Dr. Prakash an Assistant Professor at McGovern Medical School at The University of Texas Health Science Center at Houston (UTHealth).

Board certified in Cardiovascular Disease and Internal Medicine, Dr. Prakash’s clinical interests center on the bicuspid aortic valve, thoracic aortic aneurysm, and adult congenital heart disease in patients 17 and older. His research concentrates on the genetic causes of bicuspid aortic valves and related congenital abnormalities involving the left ventricular outflow tract and aorta.

Dr. Prakash’s practice philosophy includes continuous assessment, participation in research, and guideline-based therapies. Patients rely on him for long-term care and clear answers regarding their genetic conditions and prognosis due to his strong emphasis in genetic counseling, screening, and surveillance for patients and families with congenital heart disease.

Dr. Prakash is a Fellow of the American Heart Association and the American College of Cardiology.

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An Evening of Hope
Jun
13
5:30 PM17:30

An Evening of Hope

Experience an Evening of Hope, featuring award-winning vocalist, jazz radio host and Aortic Dissection survivor Patty Peterson.

Patty is a Minnesota native and is a sought-after entertainer, speaker, and host. She received the coveted Minnesota Music Award seven times for best vocalist as wells as best jazz recording and, in 2010, she was inducted into the Mid America Hall of Fame. 

Ticket price includes appetizers and one raffle ticket for a door prize. 50/50 raffle tickets will be available for purchase onsite. There will be a full menu available for purchase.

The event benefits Aortic Hope, a nonprofit community of aortic disease patients, survivors, and caregivers. Aortic Hope spreads hope, creates awareness, and provides support during the recovery and management of aortic disease. For more information, visit www.aortichope.org. 

Thank you to Crooners Lounge & Supper Club for hosting this event. 

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Sunday Support Group
May
20
7:00 PM19:00

Sunday Support Group

❤️ Certain Sundays at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/273305650

❤️ We will be holding support groups on specific Sundays. Some weeks there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged ...

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Sunday Support Group
May
6
7:00 PM19:00

Sunday Support Group

❤️ Every Sunday at 7pm EST (6pm CST, 5pm MST, 4pm PST), we will be holding a support group online recurring every Sunday at the same time, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/189780934

❤️ We will be holding support groups every Sunday at the same time. Some days there might be a guest speaker or a live demonstration but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged ...

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Aortic Hope's Caregivers Support Group
Apr
29
7:00 PM19:00

Aortic Hope's Caregivers Support Group

CALLING ALL CAREGIVERS!

Caregivers will be given an opportunity to openly share their thoughts, feelings and questions in our support group and no survivors are allowed. The facilitator is our own Jaime Barnhart.

Jaime Barnhart became an “Aortic disease caregiver” 15 years ago when her then-boyfriend-now-husband Bill,. experienced an aortic dissection. Since that time, Bill and Jaime had a family and have nursed Bill through over a dozen surgeries (multiple Aortic and OHS), hernias, infections and more. Bill and their oldest daughter have Marfan Syndrome. 

Jaime is one of the co-founders of Aortic Hope and works full time as an executive of a nonprofit trade association management in DC.

❤ Most Sundays we will be holding a support group online at either 12pm EST or 7pm EST, in a private video conference room. 

❤️ Aortic Hope's Closed Support Group
Join from PC, Mac, Linux, iOS or Android:
https://zoom.us/j/189780934

❤️Some days there might be a guest speaker, a live demonstration or an assigned group, such as Caregivers Only. but every session, we will spend time supporting each other and discussing a variety of topics pertaining to Aortic disease.

❤️ Aortic Hope and the support group facilitators are not medical professionals or therapists and will not provide medical advice of any kind. All participants are encouraged to share their personal experiences or listen to the stories from others.

Ground rules:

1. Please be prompt (7pm EST)
2. Learn how to use your device (you want to try to minimize background noise such as music and people)
3. Privacy ( try to pick a location that is private, never share information, this environment is one where you should feel safe and comfortable)
4. No recording (do not record audio or video it the group meetings)
5. We will never post or discuss content that is shared publicly. Your privacy is important to us.
6. This group is about YOU. We welcome all feedback, comments and suggestions regarding the process, content discussed and guest speakers.

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Live Q&A with Katie Moran, The Getaway Massage
Apr
25
6:00 PM18:00

Live Q&A with Katie Moran, The Getaway Massage

Stress is something that individuals within our community have to address on a daily basis. Maintaining and reducing stress is something Katie specializes in.

Join us for a very special and unique facebook live event where we will be able to participate in a brief medication and south bath session to help aid in reducing stress. Bring any questions you may have related to alternative therapies in reducing our reaction to stress.

Katie has been a Nationally Certified Licensed Massage Therapist for over 5 years. She is a Usui Reiki Master, 200 Hour Yoga Teacher, and Certified Ayurvedic Yoga Therapist. Her work is grounded in the science of healthcare, and enhanced by studies of consciousness and energy balance. Her interests lie in our potential for growth, and enjoying the human experience.

Namaste

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