Hope Shoutouts

Aortic Hope would like to give a "Shout-Out" to other individuals and organizations within the community.

 

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Aortic Hope is so excited to be able to attend this amazing event in the UK!

PATIENT ASSOCIATION INVITES THE UNIVERSITY OF LEICESTER TO HOST HIGH-PROFILE NATIONAL EVENT

MEDIA RELEASE: 29th July 2019

CONTACT: Gareth Owens T: 07471 733122 E: Gareth@kirbyhill.org

BHF Cardiovascular Research Centre to host Aortic Dissection Awareness Day UK 2019

National patient association Aortic Dissection Awareness UK & Ireland has announced that the fourth annual Aortic Dissection Awareness Day UK, on 19th September 2019, will be hosted by the British Heart Foundation Cardiovascular Research Centre at the University of Leicester. This full-day event will see over 100 patients and family members affected by Aortic Dissection join with leading national and international experts in the field of Aortic disease to share their experiences and discuss how to improve care for patients with Aortic Dissection in the UK.

Making the announcement today, Mr. Gareth Owens, Chair of Aortic Dissection Awareness UK & Ireland and an Aortic Dissection survivor himself, said: “Each year, we award the honour of hosting our flagship annual event to a centre that is doing great work in the field of Aortic Dissection. The University of Leicester has published ground-breaking research that is leading to significant improvement in care for patients across the UK. We also get great feedback from patients about the care they receive at Glenfield Hospital, where the Research Centre is located. With this award, we want to recognise and celebrate the achievements of the University of Leicester team and build a closer working relationship with them to develop further research in the field of Aortic Dissection.”

Aortic Dissection Awareness Day UK takes place on 19th September – a date established as global Aortic Dissection Awareness Day by the worldwide movement that is increasing awareness of this life-threatening disease. Over 20 countries are expected to host an Aortic Dissection Awareness event this year. With 180 delegates, the UK event in Leicester is expected to be by far the largest. In previous years, Aortic Dissection Awareness Day UK has been hosted by Barts Health NHS Trust (the largest cardiac surgery centre in Europe), Liverpool Heart & Chest Hospital; and the Royal Brompton Hospital in London. For 2019, the University of Leicester intends to make the event even bigger and better than before.

Professor Gavin Murphy, British Heart Foundation Chair of Cardiac Surgery at the University of Leicester, explains: “As a research centre, patient engagement is absolutely crucial to what we do. Aortic Dissection is a complex, multi-faceted disease and we need patients to work with us to develop and conduct the research projects that will make the biggest difference to them. I am delighted to have the opportunity to work with Aortic Dissection Awareness UK & Ireland. We are going to use this event to host a unique collaboration with patients and tackle a real research challenge in the field of Aortic Dissection.”

Aortic Dissection Awareness Day UK 2019 is an invitation-only event and is likely to be oversubscribed. More information is available online at aorticdissectionawareness.org.

PHOTO ENCLOSED: Prof. Gavin Murphy & Mr. Gareth Owens with the event organising committee in Leicester

Aortic disease awareness ribbon

We would like to thank Karl Wohkittel, Graphic Designer, for assisting us with revamping our logo and with the creation of the community Aortic Disease Ribbon car magnet!  He is very creative, professional and timely with his responses.  If you have any graphic design needs, please contact him directly karlwohkittel@outlook.com

If you are interested in an awareness car magnet, we would be more than happy to send you one with a $10 donation: www.paypal.me/aortichope

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The Society of Thoracic Surgeons

Aortic Hope is so excited to announce that we will be collaborating with The Society of Thoracic Surgeons on various programs and campaigns that will allow public access to experts, spread awareness about aortic disease issues, and provide patient education to thousands of people.

Founded in 1964, The Society of Thoracic Surgeons is a not-for-profit organization representing more than 7,500 surgeons, researchers, and allied health care professionals worldwide who are dedicated to ensuring the best possible outcomes for surgeries of the heart, lungs, and esophagus, as well as other surgical procedures within the chest.

Mission: Enhance the ability of cardio-thoracic surgeons to provide the highest quality patient care through education, research, and advocacy. 

Vision: Improving the lives of patients with cardio-thoracic diseases. 

Core Values: Quality, Innovation, Professionalism, Inclusiveness, Teamwork.

Please visit their Patient Information Page at https://ctsurgerypatients.org


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Medical ID Bracelets

Aortic Hope is pleased to announce our new relationship with Lauren’s Hope Medical ID Jewlery!

Lauren’s Hope is very excited to be able to offer everyone in the Aortic community a 10% discount simply by using AORTICHOPE as the promo code!!!

Please use this link to make your purchase as we are an affiliate and a portion of the sale will support Aortic Hope's initiatives:
https://shareasale.com/r.cfm…

WHO IS LAURE’S HOPE?

Our History
”In 2001, Lauren’s Hope introduced the very first interchangeable medical ID bracelet, and overnight, people who had grudgingly worn, or even refused to wear, the standard, plain metal medical ID bracelets of the past suddenly had attractive, durable, stylish options they could enjoy wearing and change to suit their mood, outfit, or activity.

Today, more than 400,000 people wear Lauren’s Hope medical IDs every day, and we’re proud to say that number just keeps growing.

Our ever-expanding line of medical ID bracelets, necklaces, anklets, charms, bag tags, and more is always on-trend, made to the highest quality, and guaranteed to meet your needs and expectations.”

Who Is Lauren?
”We’re often asked who Lauren is or where the name “Lauren’s Hope” came from. The original interchangeable medical ID bracelet was made for Lauren, a 13 year old with diabetes who refused to wear medical ID jewelry because, as she said, ‘It’s ugly and draws attention to my illness.’ So we set out to design a medical alert bracelet that Lauren, and the millions of people like her who avoided medical IDs when they really needed them, would actually enjoy wearing.”

MEDICAL ID BRACELETS

Medical ID bracelets serve many purposes but their main objective is to assist healthcare professionals and first responders to get an in-depth view of the patient’s medical condition so that proper treatment can be administered without delay. The bracelet is of immense help when the patient is not able to communicate clearly.

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Cabin Fever40 at Boyd’s Speedway

🎉 We are very excited to announce that Jeff Helms, caregiver of aortic dissection survivor Andrea Garrett-Helms, will be racing in the Cabin Fever40 at Boyd's Speedway!

🏎 His car will be promoting Aortic Disease Awareness by racing with the Aortic Disease Awareness Ribbon on the side of his car!!!! Two additional racers will also be helping to spread the awareness of Aortic Disease by proudly displaying the ribbon on their cars as well!

🌎 This is a huge race with people from all over the country in attendance! What a great opportunity to bring Aortic Disease Awareness to the forefront of everyone's mind!

🏎 FYI...in case you didn't know, the awareness ribbon incorporates Aortic Hope's 3 hearts at the top. Each heart represents the Patient, Survivor and Caregiver.

🏆 We are not sure if this event is being televised or live streamed but as soon as we have additional information we will let you know. However, if anyone is in the Ringgold, GA area on Saturday, please consider attending the event and share pictures!

❤ Stay tuned on Saturday as we are featuring Andrea in our Saturday Survivor Series! She will share with everyone the incredible story of her Aortic Dissection and the birth of her child. It is a very emotional and powerful story, one you will find quite inspirational!

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SMILE with Aortic Hope

Aortic Hope, Inc is proud to be one of Amazon’s charity partners!

When you are ready to shop with Amazon, log into smile.amazon.com, and choose Aortic Hope from the list of charities and we will receive 0.5% of your qualified purchases directly from Amazon!

It's that simple so log in and say "cheese"...smile with Aortic Hope today!