2020 Board of Directors:
Carin Andersen - Director of Public Relations
Jaime Barnhart - Director of Operations
William (Bill) Barnhart - Director of Marfan Outreach
Gregg Aaron Greenberg - Director of Community Outreach & Fundraising
Filiz Demirci - Director of Community Events & Webmaster
Betsey Luipold - Director of Social Media & Marketing
Tammy Warner - Director of Volunteer Services
Connecting Hearts...One Beat at a Time
It was the spring of 2016 when two aortic disease survivors discussed the possibilities of hosting a celebratory event in honor of the upcoming Global Aortic Dissection Awareness Day. Together, they talked about their hopes and dreams, cried over their shared struggles, and laughed in anticipation over the prospects of meeting in person. Once the two met, they quickly realized the need for an organization to be created that would focus on all aspects of Aortic Disease.
Having just recently connected with a Caregiver to a husband and child with Marfan Syndrome), the three recognized that in order for this group to truly come to fruition, having a Caregiver would be an intricate piece of the puzzle.
In bringing different experiences and perspectives to the group, Aortic Hope was formed. The group is now a globally recognized non-profit organization whose focus is to Spread Hope, Create Awareness and Provide Support during the recovery and management of Aortic Disease.
Aortic Hope added additional key individuals that all have experienced Aortic Disease.
Together, they work tirelessly in not only managing their personal lives but organizing fundraisers, online support groups, providing daily inspiration and wisdom, hope mail care packages, and MUCH, MUCH more. Our current Board of Directors includes Carin Andersen, Bill Barnhart, Jaime Barnhart, Gregg Aaron Greenberg, Betsey Luipold, Filiz Constantini and Tammy Warner.
In 2019, Aortic Hope became part of a working group, Think Aorta US. This group strives to drive home the message the when there is undiagnosed chest pain, Think Aorta. We are collectively working to have this message in every emergency room in the United States. Secondary goals include spreading this life-saving message with first-responders.
This is only the beginning...
Aortic Hope strives to Connect Hearts....One Beat At A Time. Your donations are graciously appreciated, which helps make our initiatives become your reality...